board of trustees


BOARD OFFICERS (2018-2019)

  info@musclemovementfoundation.org

info@musclemovementfoundation.org

Rob DeMasi

Founder & President

Rob DeMasi battled misdiagnoses for four years before reaching a diagnosis of myasthenia gravis (MG). Myasthenia gravis is an autoimmune neuromuscular disease which causes fluctuating muscle weakness and fatigue throughout the body. After enduring a difficult journey leading to a definitive diagnosis, and enduring the hardships associated with living with muscle disease, he founded the Muscle Movement Foundation in 2012.

Understanding muscle disease from a first person perspective, Mr. DeMasi travels the country delivering the MMF message in efforts to assist his fellow Muscle Champions in need.

In 2016, Wilmington University Magazine published Rob DeMasi's story and inspiration in forming the Muscle Movement Foundation. To view the story click the link below!

Iron Man, Iron Will via Wilmington University Magazine

Request Mr. DeMasi to speak at your entity!


Danielle Raye

Secretary to the President

Danielle began her journey with the Muscle Movement Foundation after dedicating five years of raising awareness, fundraising, and volunteering for our Muscle Champions.

Her inspiration derives from being a loving caregiver to a family member who is affected by muscle disease.

Her tenure as Secretary to the President began in 2016.

            info@musclemovementfoundation.org

          info@musclemovementfoundation.org


Teresa Votta

Vice President

Teresa is a Vice President with JPMorgan Chase who holds over 25 years of banking experience, including: operations, technology, credit card and client interaction with ultra high net worth clients.

Her tenure with the Muscle Movement Fnd. began in 2012, which was inspired by a diagnosis of muscle disease in her family.

-MS, Organizational Leadership via Wilmington University.

-BA, Organizational Dynamics via Immaculata College.

            info@musclemovementfoundation.org

          info@musclemovementfoundation.org


gabrielle crosley

Secretary

Gabrielle began her tenure with the Muscle Movement Fnd. in 2018. Prior to her involvement as a secretary, Gabrielle was a proud Muscle Movement Fnd. supporter! She attended events, fundraised, and loved the message the Muscle Movement Fnd. delivered to her local community.

She continues her health journey - moving her healthy muscles to combat muscle disease - except now as an Official Muscle Movement Fnd. Board Officer!

-B.S., Paralegal Studies via Widener University

 

            board@musclemovementfoundation.org

          board@musclemovementfoundation.org


TINA VOTTA

ASSISTANT SECRETARY

              board@musclemovementfoundation.org

            board@musclemovementfoundation.org

Tina has served as a dedicated Muscle Movement Foundation supporter, volunteer, and advocate since 2012!

Her tenure as assistant secretary began in 2017, Her inspiration in providing life-changing support to our Muscle Champions derives from a diagnosis of muscle disease in her family.


Michael Kemske

             board@musclemovementfoundation.org

           board@musclemovementfoundation.org

Treasurer

Michael has served as the Muscle Movement Foundation treasurer since 2015.

A compassionate caregiver of a family member affected by muscle disease, Mr. Kemske directly understands the significance of home and medical care.

He is skilled in calculating the alarming costs that our families endure by way of medical, non-medical, and additional expenditures.

-BS, Accounting via West Chester University


Corey Olsen

Community Outreach Officer

             board@musclemovementfoundation.org

           board@musclemovementfoundation.org

Corey is currently a post-baccalaureate premedical student. Prior to furthering his education, he was a medical device consultant who specialized in the safety and dependability of medical equipment.

These factors are attributable to healthcare achievements and the strength, autonomy, and quality of life of our families in need.

-BS, Kinesiology and Exercise Science via University of Delaware

 

 

 


BOARD MEMBERS (2018-2019)

Joseph P. Aviola, Ed.D.

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-Associate Professor and Director of Crisis Communication and Public Relations Office, Wilmington University.

-Prior Program Chair for the Master of Administration of Justice and Homeland Security Degree Programs, Wilmington University.

-Prior Chairman for the Wilmington University Faculty Senate.

-In 2010, Governor Jack Markell appointed Dr. Aviola to the State of Delaware Homeland Security Advisory Council.

-22 year tenure as a Delaware State Trooper, including: patrol, criminal investigations, undercover narcotics investigations, the police-training academy, and administration.

-Mastered certified State Police Academy Instructor, with expertise in police ethics.

-Graduate of Northwestern University School of Police Supervision and Leadership.

-Prior head football coach for St. Elizabeth High School (DE), Delaware Military Academy (DE), and a Delaware High School All-Star Team.


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Michael Durstein

-Financial Advisor, Diamond State Financial Group

-Registered Representative and Investment Advisor Representative, Securian Financial Services, Inc. 

-BS, Criminal Justice via University of South Carolina


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MIKE LO SAPIO


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bill doherty


Cory Frederick

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-President & Head Coach, Tyrant Wrestling

-President, Tyrant SportsGear


Dave Otlowski

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-29 year counselor/coach, Glen Mills School

-BA, Psychology and History Minor, via Salisbury University


 

PHYSICIANS (2018-2019)

Olga A. Katz, M.D., Ph.D.

Board-Certified Neurologist

Website: olgakatz.com

"As a medical doctor I have over twenty years of clinical and scientific experience. I have been board-certified as a specialist in Neurology. I have performed scientific research in the fields of Neurophysiology and since 2004 I also have been a member of the faculty of Thomas Jefferson University. Conditions diagnosed and treated in my practice include stroke, movement disorders, back and neck pain, seizure disorders, dementias, neuroimmune conditions, autonomic dysregulations and multiple others.  

My practice collaborates with some of the best specialists in the world in the fields of ophthalmology, rehabilitation, physical therapy, neuropsychology, as well as rheumatology, cardiology and urology. My practice also operates an infusion center, where we treat patients with a variety of conditions, such as multiple sclerosis (MS), chronic inflammatory demyelinating polyneuropathy (CIDP), multifocal motor neuropathy (MMN). We also perform infusion therapy for severe headaches and migraines, as well as a variety of other conditions. 

I commonly refer patients to specialists in diet and nutrition, psychology, anti-aging therapy and wellness. I believe in an integrative approach and strive to treat not the isolated disease, but the specific, unique human being, and to aim towards improvement of all aspects of life, restoring its fullness as much as possible. 

Our classically-decorated office is located in Center City Philadelphia on the first floor of a historic building that faces the medicinal garden of the Pennsylvania Hospital. Our main telephone number is 215-547-3573."