MUSCLE MOVEMENT ADVISORY COUNCIL (MMAC)

(2018-2019)

The Muscle Movement Fnd. Advisory Council consists of our Muscle Champions and their families who help better connect us to real-world experiences, barriers, and accomplishments faced by individuals living with neuromuscular disease. Our council is dedicated to discovering ideas and resources, while sharing viewpoints and strategies to help us best enhance our families' quality of life.


MMAC MEMBERS

MMAC currently has 9 available positions for 2019. If you are interested in serving on the MMAC please email info@musclemovementfoundation.org! Our MMAC members meet quarterly via a virtual networking platform and one time per year face-to-face.

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Michael Lo Sapio

MMAC CHAIRMAN

 

 


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Gloria Smith, RN, BSN

NEW JERSEY

Gloria is a loving mother to her son Harry Smith, who was diagnosed with Emery-Dreifuss muscular dystrophy (EDMD). She works as a registered nurse and is the Founder of Harry's Heroes, a local organization inspired by the diagnosis of her son. She operates 24/7 as a caregiver and believes awareness is vital in furthering research and treatments for neuromuscular disease. She is a proud supporter of the MMF and her son, Harry, serves as our official New Jersey State Ambassador!