Rob DeMasi

Founder and president

Mr. DeMasi battled misdiagnoses for four years before reaching a diagnosis of myasthenia gravis (MG). Myasthenia gravis is an autoimmune neuromuscular disease which causes fluctuating muscle weakness and fatigue throughout the body. After enduring a difficult journey leading to a definitive diagnosis, and enduring the hardships associated with living with muscle disease, he founded the Muscle Movement Foundation in 2012.

Understanding muscle disease from a first person perspective, Mr. DeMasi travels the country delivering the MMF message in efforts to assist his fellow Muscle Champions in need.

In 2016, Wilmington University Magazine published Rob DeMasi's story and inspiration in forming the Muscle Movement Foundation. To view the story click the link below!

Iron Man, Iron Will via Wilmington University Magazine

Request Mr. DeMasi to speak at your institution! Email: Themmo2012@gmail.com

 

 

 


Teresa Votta

Vice president


Dr. Olga A. Katz

Board-Certified Neurologist | Website: olgakatz.com

"As a medical doctor I have over twenty years of clinical and scientific experience. I have been board-certified as a specialist in Neurology. I have performed scientific research in the fields of Neurophysiology and since 2004 I also have been a member of the faculty of Thomas Jefferson University. Conditions diagnosed and treated in my practice include stroke, movement disorders, back and neck pain, seizure disorders, dementias, neuroimmune conditions, autonomic dysregulations and multiple others.  

My practice collaborates with some of the best specialists in the world in the fields of ophthalmology, rehabilitation, physical therapy, neuropsychology, as well as rheumatology, cardiology and urology. My practice also operates an infusion center, where we treat patients with a variety of conditions, such as multiple sclerosis (MS), chronic inflammatory demyelinating polyneuropathy (CIDP), multifocal motor neuropathy (MMN). We also perform infusion therapy for severe headaches and migraines, as well as a variety of other conditions. 

I commonly refer patients to specialists in diet and nutrition, psychology, anti-aging therapy and wellness. I believe in an integrative approach and strive to treat not the isolated disease, but the specific, unique human being, and to aim towards improvement of all aspects of life, restoring its fullness as much as possible. 

Our classically-decorated office is located in Center City Philadelphia on the first floor of a historic building that faces the medicinal garden of the Pennsylvania Hospital. Our main telephone number is 215-547-3573."


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Michael Kemske

chief financial officer

Michael has served as the Muscle Movement Foundation treasurer since 2015.

A compassionate caregiver of a family member affected by muscle disease, Mr. Kemske directly understands the significance of home and medical care.

He is skilled in calculating the alarming costs that our families endure by way of medical, non-medical, and additional expenditures.


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Danielle Raye

secretary

Danielle began her journey with the Muscle Movement Foundation after dedicating five years of raising awareness, fundraising, and volunteering for our Muscle Champions.

Her inspiration derives from being a loving caregiver to a family member who is affected by muscle disease.


Joyce Hrycak

assistant secretary

 


Corey Olsen

community outreach coordinator

Corey is currently a post-baccalaureate premedical student. Prior to furthering his education, he was a former medical device consultant who specializes in the safety and dependability of medical equipment.

These factors are attributable to healthcare achievements and the strength, autonomy, and quality of life of our families in need.

 

 

 


MMF Advocates

Understanding muscle disease from a first person perspective is essential for advancements in research and treatments. Essential members of our team, our advocates are Muscle Champions who take initiative in spreading the MMF message and inspire others to live like a Champion! They heroically take a stand against diseases that cause life-altering circumstances. They voice their reality in efforts to empower fellow Muscle Champions, educate professionals, and lobby for life-changing treatments and support.

 

DE- Muscle Champion, Mike Smith (Duchenne Muscular Dystrophy)

IL- Muscle Champion, Coach Mike Powell (Polymyositis)

MD- Muscle Champion, Rachel Engler (Myasthenia Gravis)

NJ- Muscle Champion, Harry Smith (Emery-Dreifuss Muscular Dystrophy)

PA- Muscle Champion, Damon Church (ALS-Lou Gehrig's Disease)

                           - Muscle Champion, Max French (RYR1 Myopathy)

                           - Muscle Champion, Masion Nellius (Duchenne Muscular Dystrophy)

WA- Muscle Champion, Angeal Kayiales (Duchenne Muscular Dystrophy)