Mission and Vision
MMF is committed to empowering families who are affected by muscle disease, by way of physical, financial, and emotional accommodations.
The Muscle Movement Foundation’s mission is to enhance the strength, autonomy, and quality of life of families affected by neuromuscular disease through support groups, inclusion, and life-changing accommodations.
The quality of life of families affected by muscle disease will significantly improve in result of advocacy, volunteerism, and involvement in communities across the U.S.
The Muscle Movement Foundation will be recognized for fulfilling the unmet needs of children and adults affected by neuromuscular disease in The FIrst State, and across the U.S.
-Respect the abilities of all individuals.
-Responsibility to steward MMF’s mission with integrity.
-Remain resilient in overcoming barriers to empower families in need.
The Muscle Movement Fdn. prides itself on the strength of Rob DeMasi. Rob battled life-threatening complications and side effects for four years through misdiagnoses. At 17 years old, he endured twenty days in the hospital virtually paralyzed from head-to-toe. After fighting for four years, this hospital visit marked the final year he would endure misdiagnosed. Rob finally received a proper diagnosis of myasthenia gravis (MG); an autoimmune disease that causes fluctuating muscle weakness and fatigue. He pays tribute to "his team" (support system), who supported him during the weakest times of his life. Rob DeMasi founded the Muscle Movement Foundation in 2012 for the purpose of bringing a team effort to the fight against muscle disease, so families affected families can live life stronger. Since 2012, he has traveled the country as a motivational speaker and has united communities in advocacy and volunteerism to further MMF’s mission. Rob operates 24/7 to raise vital awareness and support for his fellow Muscle Champions!
MUSCLE DISEASE DAMAGES MUSCLES AND BREAKS HEARTS...
Reportedly, over one million individuals in the United States are affected by neuromuscular disease. Neuromuscular disease limits an individual's ability to complete basic muscular movements such as, walking, talking, eating, and breathing. These diseases keep our prominent research centers and doctors at hold, resulting in life altering circumstances and death. Although we currently do not have a cure for our fathers, mothers, sons, and daughters, we relentlessly work to provide accommodations to ease the burden muscle disease may cause on our affected families.
Physical, financial, and emotional accommodations continue to provide life-changing strength and quality of life!
Physical support: As neuromuscular disease progresses, our Muscle Champions may experience physical restraints due to fatigue, weakness, and paralysis. Our goal is to combat these symptoms by way of physical accommodations. We have provided wheelchairs, wheelchair accessible automobiles, ramps, stair-lifts, walkers, and additional medical equipment to enhance autonomy and strength.
Financial support: Unfortunately, when an individual is diagnosed with neuromuscular disease the cost of living is an increased stressor. Medical bills, medication costs, co-pays, travel costs, and daily living expenses may average at alarming amounts. Our goal is to financially support our Muscle Champions and their families so they have the greatest opportunity to overcome the effects of their disease.
Emotional support: Living with neuromuscular disease may cause emotional trauma. A diagnosis may result in isolation, insecurity, and uncertainty. Our goal is to connect nearby Muscle Champions to provide the love and support every individual deserves. We work to operate peer-to-peer support groups to answer questions, build communal relationships, and help strengthen coping strategies. Our private Facebook support group is an immediate resource to share stories and connect families across the U.S.
Who We Serve
The Muscle Movement Foundation provides life-changing accommodations to families affected by neuromuscular disease. Neuromuscular disease is a broad categorization for diseases that cause muscle-debilitating symptoms and life-altering circumstances. To view a list of the diseases MMF covers. Click here.
As of 1/1/2019, individuals who reside in one of the following states are eligible to receive assistance: Delaware, Maryland, New Jersey, and Pennsylvania. The applicant must be a legal and permanent resident of the United States. If the applicant claims U.S. residence through a work or educational visa the individual is not eligible for assistance, as they would be considered legal residents but not permanent ones. All applications must be completed in full and mailed to 651 Valley Rd., #673, Hockessin, DE 19707 in order to be processed.
Transforming Hope Into Reality
MMF creates vital awareness & support to empower families affected by muscle disease!
% of donations that empower families in need.
Meaning Behind Our Logo
1.) Muscles - The muscles symbolize the amazing support we receive from the community, which powers our fight against neuromuscular disease!
2.) Lettering - The combined letters stand for the initials of our organization - the Muscle Movement Foundation!
3.) Camouflage - The camouflage symbolizes our fight - our fight to combat the debilitating effects of muscle disease.
4.) Unraveled Ribbon - The unraveled ribbon symbolizes the MMF will work to empower our Muscle Champions, and their families, until a cure for muscle disease is unraveled.