leadership team

(2019-2020)

The Muscle Movement Foundation's Leadership Team is proud to operate in honor of over one million Americans who are affected by neuromuscular disease. The MMF Leadership Team is a collective body who honors the fiduciary responsibility to steward MMF's assets to fulfill its mission!

Meet the volunteers who lead MMF's efforts to help families who are affected by muscle disease LIVE LIFE STRONGER!


board of directors

  • MICHAEL DURSTEIN

    Diamond State Financial Group, LLC

  • MICHAEL KEMSKE

    CreditShop, LLC

  • DAVID OTLOWSKI

    Glenn Mills School

  • TINA VOTTA

    Sovereign Property Management, LLC

  • COLIN MCKEEFERY

    FME Lighting, LLC

  • BILL DOHERTY (Chair)

    Doherty Funeral Homes, Inc.


Staff

DANIELLE RAYE   Secretary/Treasurer

DANIELLE RAYE

Secretary/Treasurer

Danielle’s tenure with the MMF started in 2015. Prior to her current position, she has served as a fundraising volunteer, events coordinator, community outreach specialist, and Secretary to the President. Danielle brings over 10 years of experience in customer service and management to the MMF, and loves serving the MMF Community!

 
TERESA VOTTA   Vice President

TERESA VOTTA

Vice President

Teresa started her journey with the MMF in 2012 as a volunteer. She worked directly with Rob to establish the 501(c)(3) status of the organization and volunteered her time as a fundraiser and events coordinator. Teresa has over 25 years of experience in banking and organizational leadership. Teresa has earned a Master’s degree in Organizational Leadership from Wilmington University and a BA, Organizational Dynamics from Immaculata University.

 
ROB DEMASI    Founder and President

ROB DEMASI

Founder and President

After four long years of misdiagnoses, Rob was properly diagnosed with myasthenia gravis (MG) in 2009. Rob immediately began his involvement in the nonprofit sector as a motivational speaker and fundraiser for multiple 501(c)(3) organizations who serve the neuromuscular disease community. He set his vision on the development of a 501(c)(3) organization that would provide individuals who are living with muscle disease immediate support while they remain hopeful for a cure. In 2012, he founded the MMF to provide accommodations to families so they have the best chance to overcome the effects of disease. His work led him to further his education, specializing in organizational leadership and the nonprofit sector. Rob holds a Master of Science in Management (MSM) degree with a Concentration in Nonprofit Management from Wilmington University. He also has earned a Graduate Certificate in Nonprofit Management and BS in Behavioral Science. Rob is a renowned speaker and travels the country to spread the MMF Message in honor of his fellow MMF “Muscle Champions”! He has been recognized for his diverse work including being selected as a Delaware Business Times 40 Under 40 Award Winner.


Finance Committee

  • KEITH DELANEY

    Santora CPA Group

  • RYAN WALSH

    Encompass Accounting, Inc.

  • ANDREW BAKER (Co-Chair)

    Diamond State Financial Group, LLC

  • MICHAEL KEMSKE (Chair)

    CreditShop, Inc.