MUSCLE MOVEMENT FOUNDATION AT OHIO STATE STUDENTS FINISH LIFE-CHANGING PROJECT FOR LOCAL LIVING WITH MUSCULAR DYSTROPHY
OHIO STATE UNIVERSITY STUDENTS BUILD PATH FOR MMF MUSCLE CHAMPION
GROVEPORT, OH - Dominic Cicconi, the Founder of the Muscle Movement Foundation at Ohio State, was excited to return to campus for the fall semester of 2018 after completing an internship as an engineer in Robinson, IL and Detroit, MI. After an exciting and successful internship, Dominic was excited to reunite with his fellow club officers to continue to enhance awareness and support for the Muscle Movement Foundation on campus. Dominic was straightforward when asked about his goals for this semester:
“We want to find an individual affected by neuromuscular disease in our local area and provide an accommodation to increase the individual’s quality of life.” -Dominic Cicconi
Dominic understands the importance of the accommodations the Muscle Movement Foundation provides to families in need. In March 2017, Dominic was diagnosed with Guillain-Barre syndrome after being partially paralyzed for three months. To this day, he gives credit to the support of his family, friends, and support team for assisting him during the weakest times of his life. He hopes to provide the same assistance to a Muscle Movement Fdn. Muscle Champion in need.
“Our goal is to continue Rob’s vision (Founder and President of the Muscle Movement Foundation) to transform hope into reality. Rob and I both understand what it feels like to lose the ability to shower, walk, eat food, talk, and complete basic daily tasks. If my club members and I can eradicate any of the uncertainty, fear, doubt, or stress in the life of an individual battling similar symptoms, we are accomplishing our goal.” -Dominic Cicconi
Dominic and students from the Ohio State University were ecstatic to meet their first Muscle Movement Fdn. Muscle Champion this semester. Ron Bobst has been living with Becker muscular dystrophy for approximately 34 years. Becker muscular dystrophy (BMD) is a degenerative disease that causes weakness in the pelvic region, thighs, shoulders, and can also affect the heart. The disease is very similar to duchenne muscular dystrophy (DMD); however, the disease is said to progress at a slower rate than DMD. There is currently no cure.
Ron submitted an application for assistance to the Muscle Movement Foundation (MMF) this fall. He requested assistance with basic chores around the house such as, removing shower doors, changing light bulbs, and replacing shower heads. MMF at Ohio State club members were honored to visit Ron and assist with the tasks. Ron also submitted a “wish list”, which included a wheelchair accessible path to connect his driveway to his deck.
Last week, Ron’s wish came true! Student members of the MMF at Ohio State traveled to Ron’s house to construct a concrete wheelchair accessible path. This physical accommodation will significantly enhance Ron’s autonomy and quality of life just in time for the snow!
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