Josh Scheck | 2018 MMF National Athlete of the Year

JOSH SCHECK EARNS 2017-2018 MUSCLE MOVEMENT FDN. NATIONAL ATHLETE OF THE YEAR AWARD

NEW JERSEY YOUTH HOCKEY PLAYER DEDICATES SEASON TO NEW TEAMMATE

WALL TOWNSHIP, NJ - Coach Scott Harrington and the Jersey Shore Wildcats Bantam Black Hockey Team were thrilled to welcome a special teammate to the ice this past hockey season. The team joined the Muscle Movement Foundation's Charity of Champions campaign; a campaign that unites athletes across the country in the fight against neuromuscular disease. By way of the Muscle Movement Foundation (MMF), Harry Smith was signed to the Jersey Shore Wildcats Hockey Team!

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Harry is living and refusing to lose to Emery-Dreifuss muscular dystrophy (EDMD). EDMD is a form of muscular dystrophy that is characterized by muscle degeneration and weakness, which primarily affects an individual's voluntary muscles. The disease commonly affects the individual's calves, shoulders, upper arms, and additionally may cause contractures (hardening of muscles or tissue) in the heels, back of the arms (elbows), and neck. EDMD also commonly displays heart problems. The disease is a genetic condition and may be inherited in an x-linked recessive pattern (from the mother), autosomal dominant pattern (from either parent), or autosomal recessive pattern (from both parents). Genetic research continues in attempt to develop a stronger understanding of the disease and discover effective therapies that may assist with the presence of muscle degeneration.

Unfortunately, Harry lost his ability to stand and walk this past year. Due to the progressive degeneration of Harry's muscles, and after being denied insurance coverage for physical therapy, Harry's strength and mobility diminished. This is when Josh Scheck, a fourteen year old scholar-athlete, stepped up to make a difference. Josh immediately began to raise awareness and contributions to directly enhance Harry’s strength, autonomy, and quality of life. He dedicated each game to his teammate, Harry Smith #55, raising donations during each performance on the ice. Additionally, Josh hit the streets to spread the Muscle Movement Fdn. message. He visited local businesses to ensure they understood their potential impact in becoming involved. Businesses such as, NJ Spine and Wellness, the Foundation for MERS, American Stair & Rail Artisans, LC Doggy Club, DCG Creative, Manalapan BOE President, Dotty Porcaro, Deputy Mayor of Manalapan Township, Susan Unger Cohen, family and friends of the Jersey Shore Wildcats, and more were more than happy to support Josh in his fundraising efforts!

  Muscle Movement Fdn. Muscle Champion, Harry Smith, and Josh Scheck!    Photo credit: Jerry Carino, Asbury Park Press

Muscle Movement Fdn. Muscle Champion, Harry Smith, and Josh Scheck!

Photo credit: Jerry Carino, Asbury Park Press

Josh lead the MMF Charity of Champions scoreboard throughout the 2017-2018 year. He competed against more than 100 athletes and over 20 teams from 10 states throughout the country; in efforts to raise the most awareness and support for a local Muscle Movement Fdn. Muscle Champion in need. Josh single-handily raised $2,500 of the Jersey Shore Wildcat’s $4,800 raised for MMF Muscle Champion, Harry Smith! That is more than 50% of the team’s total initiative, and 250% of Josh’s pre-season goal of $1,000!

This impressive young man was honored by way of MMF Founder and President, Rob DeMasi, at the Jersey Shore Wildcat’s end-of-year ceremony. Josh was awarded the 2017-2018 Muscle Movement Fdn. National Athlete of the Year award; an award that acknowledges a single scholar-athlete in the United States who is creating an impact in the muscle disease community through advocacy and initiative.

  Muscle Movement Fdn. Muscle Champion, Harry Smith, and Josh Scheck race down the road!    Photo Credit: EvaJo Alvarez

Muscle Movement Fdn. Muscle Champion, Harry Smith, and Josh Scheck race down the road!

Photo Credit: EvaJo Alvarez

Josh lead his team to a National Championship on and off the ice! In addition to Josh Scheck being crowned the 2017-2018 MMF National Athlete of the Year, the Jersey Shore Wildcats Hockey Team was crowned 2017-2018 MMF National Champions! Click here to read the team’s article! Furthermore, Josh’s teammates Billy Hrehowsik and Marcus Franco were also recognized! Billy was awarded the 2017-2018 MMF National Athlete of the Year Second Runner-Up Award and Marcus earned the 2017-2018 MMF National Athlete of the Year Runner-Up Award!

Congratulations to Josh and the entire Jersey Shore Wildcats Bantam Black Hockey Team for demonstrating exemplary leadership and dedication to the Muscle Movement Fdn., on and off the ice, in honor of their teammate #55 Harry Smith!

Click here to view a live video about Harry and team via Jerry Carino, Asbury Park Press.

  2017-2018 Muscle Movement Fdn. National Athlete of the Year, Josh Scheck

2017-2018 Muscle Movement Fdn. National Athlete of the Year, Josh Scheck

As you can see, impact starts with initiative! Our 2018-2019 MMF Charity of Champions campaign is now active! Are you or a loved one on an athletic team? Click here to create your very own Muscle Movement Fdn. page, empower locals affected by muscle disease, and earn accredited community service hours along the way. It takes a team effort to fight muscle disease. And our team consists of scholar-athletes across the country!

Questions?: info@musclemovementfoundation.org

© 2018 Muscle Movement Foundation | www.MuscleMovementFoundation.org

MMF Crush Course | Dewey Beach, DE

LOCALS BRAVE HYPE OF HURRICANE AND HEAD TO DEWEY BEACH TO “CRUSH” MUSCLE MOVEMENT FDN. COURSE

MUSCLE MOVEMENT FDN. DELAWARE CRUSH COURSE RAISES OVER $10,500 TO COMBAT NEUROMUSCULAR DISEASE

DEWEY BEACH, DE - The Muscle Movement Foundation’s Delaware Crush Course was hosted in Dewey Beach, DE this past Saturday. The six block endurance course was located on the beach from Dagsworthy Avenue to Collins Avenue, and featured an after party at The Starboard Restaurant. Despite the potential weather conditions presented by Hurricane Florence, the Muscle Movement Foundation decided to schedule the event as planned.

Although the hype of the hurricane flooded the news, locals in the Sussex County, DE area were not intimidated by the potential weather. In fact, many messages, posts, and comments on social media embraced the potential hurricane with comments such as,

“With high ocean tides, a small beach, sand under my feet, and an orange crush at the finish line, I’m ready to crush the course! I’ll be there!” -Anonymous

“Hurricane Florence on the horizon, wind in our faces, and sand in our teeth. It’s all about showing up! -MMF Crush Course Team Captain, Kristen Stout

“We are excited to welcome many families, and I don’t think the potential weather will slow down the MMF’s participants. In fact, I believe there is an important message within all of this — the MMF’s affected families may endure adversity throughout their lives, which may very well feel like a hurricane. Muscle disease may cause lots of uncertainty, adversity, and obstacles. Nonetheless, the Muscle Movement Fdn.’s Muscle Champions, and families, remain unstoppable in spite of life’s hurricanes. We are honored to welcome supporters to the Town of Dewey Beach in honor of the MMF and over one million Americans affected by neuromuscular disease.” -Mayor TJ Redefer

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The ocean’s tides were high and there was little beach to operate with; nonetheless, the sun was shining and the sky was clear! Over 100 registrants checked in at The Starboard Restaurant at 10:30 a.m. Registrants enjoyed the sun, hydrated, and changed into their MMF Crush Course tank tops to prepare for the event. At noon, registrants were directed to the beach on Dagsworthy Avenue. MMF Crush Course Committee Member and Personal Trainer of RISE Fitness, “Red” Ryan Ennis, welcomed the participants and explained the course. The participants were separated into two groups. The first group shot from the starting line like they were launched from a cannon! The participants made their way down the six block endurance course. When the first group completed station #3, the second group made their way down the beach!

  Participants in group #1 sprint to the first station of the MMF 2018 Delaware Crush Course

Participants in group #1 sprint to the first station of the MMF 2018 Delaware Crush Course

Following the event, Steve “Monty” Montgomery and The Starboard Restaurant welcomed all registrants in “The Shark Tank” — The Starboard Restaurant’s lively VIP room! The Starboard Restaurant donated tons of food such as, caesar salads, pretzels with spicy mustard, fresh fruit, jerk chicken with honey mustard, and old bay wings with blue cheese and ranch! The 21 and older crowd also received two complimentary orange crush drinks! Additionally, Jack’s Country Maid Deli, who is an annual sponsor of the Muscle Movement Fdn., provided four fresh six-foot subs! The afternoon was filled with great company, smiles, fun conversation, a live raffle, music, and more fun!

  Muscle Movement Fdn. 2018 Delaware Crush Course Committee Members and volunteers take a picture with MMF Muscle Champions, Josh Wallace (front left), and Colty Wallace (held in the arms of grandfather Kenneth Wallace) at the MMF Crush Course after party at The Starboard!

Muscle Movement Fdn. 2018 Delaware Crush Course Committee Members and volunteers take a picture with MMF Muscle Champions, Josh Wallace (front left), and Colty Wallace (held in the arms of grandfather Kenneth Wallace) at the MMF Crush Course after party at The Starboard!

Thanks to Mayor TJ Redefer, Commissioner Paul Bauer, The Starboard Restaurant’s Steve “Monty” Montgomery and Keith “Toastie” Kirk, and all event sponsors, supporters, and registrants, the Muscle Movement Foundation’s first ever Crush Course raised just over $10,500 to help provide life-changing accommodations to families affected by neuromuscular disease!

It takes a team effort to fight muscle disease. And the Muscle Movement Fdn.’s team in Dewey Beach, DE is STRONG!

Questions?: info@musclemovementfoundation.org

© 2018 Muscle Movement Foundation | www.MuscleMovementFoundation.org

MMF Resources | CICRF

MUSCLE MOVEMENT FDN. RESOURCE FOR NEW JERSEY FAMILIES

CATASTROPHIC ILLNESS IN CHILDREN RELIEF FUND; A NEW JERSEY STATE PROGRAM

TRENTON, NJ - The Catastrophic Illness in Children Relief Fund (CICRF) is a New Jersey state program, designed to assist families struggling with the financial responsibilities that accompany a child's significant health problems. The program has existed for over 25 years, and has assisted hundreds of families annually. Established by legislation in 1988, CICRF is intended to be a financial resource that can help New Jersey families, regardless of income, cope with medical expenses for their children that are not fully covered by insurance, state or federal programs, or any other resource. The Fund is designed to provide a financial safety net for families struggling with a child’s previously incurred expenses.

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Since its inception the Fund has helped 9,057 applicants with more than $180 million. For Fiscal Year 2018, the Commission has approved nearly $8 million in assistance for 349 eligible applicants. In Fiscal Year 2017, the Commission approved over $6 million in grants to 342 eligible applicants. 

BASIC ELIGIBILITY GUIDELINES:

  • The applicant child must be under the age of 22 when expenses were incurred.

  • Expenses must have already been incurred by the family; they cannot be prospective in nature.

  • The applicant family must reside in New Jersey for at least three months prior to application and at least one of the applicant parents must be a legal, permanent resident of the United States. For purposes of our program, parents who are residing in the U.S. under a work or educational visa would not be eligible for assistance, as they would be considered legal residents but not permanent ones.

  • The eligible out-of-pocket expenses must exceed 10% of the family’s annual income and 15% of any income over $100K. Example: a family with an income of $50,000 per year would need $5,000 in eligible expenses in order to meet their eligibility standard, but a family making $150,000 would need $17,500 (10% of $100K = $10K plus 15% of $50K = $7,500).

For more information or to apply online, visit www.njcatastrophicfund.org!

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The Catastrophic Illness in Children Relief Fund also works with The Camden County Board of Freeholders to create the Camden County Catastrophic Illness in Children Relief Fund Bridge Loan program which provides secure “bridge loans” up to $5,000 to be used for eligible down payments for expenses such as home modifications, vehicle modifications, or equipment necessary to improve mobility. This particular option is only available to families residing in Camden County, New Jersey. Click here to view this program!

The information in this article was approved and provided by way of:

 Amy E. Taklif, M.S.W., L.S.W.

Amy.Taklif@dhs.state.nj.us

Catastrophic Illness in Children Relief Fund

Main: 609-292-0600

Fax: 609-633-2947 or 609-341-5350

 

 

Questions?: info@musclemovementfoundation.org

© 2018 Muscle Movement Foundation | www.MuscleMovementFoundation.org

Rob DeMasi | Delaware Business Times Award Winner

ROB DEMASI SELECTED AS DELAWARE BUSINESS TIMES (DBT) 40 AWARD WINNER

MUSCLE MOVEMENT FDN. FOUNDER RECOGNIZED AS MOST ACCOMPLISHED LEADERS UNDER 40 YEARS OLD

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WILMINGTON, DE - Congratulations to our authentic and resilient leader, Rob DeMasi, for being selected as the 2018 Delaware Business Times (DBT) 40 Award Winner!

Delaware Business Times honored Rob as a DBT40 Winner – a select group of the region’s best and brightest young professionals, who are making a difference with their intelligence, initiative and innovation. The DBT40 Awards program recognizes 40 of Delaware's most accomplished leaders under 40 years old, for their Professional Accomplishments, Community Service, Leadership and Vision! Congratulate Rob by submitting a testimony: Click here!

  Rob DeMasi, Founder & President of MMF

Rob DeMasi, Founder & President of MMF

The DBT40 event is taking place on October 23, 2018 from 5:30-8:00 p.m. at The Baby Grand, 818 N. Market Street, Wilmington, DE! Tickets are $55 each.

This event is expected sell-out! Over 250 local executives and guests will gather to celebrate and honor Rob DeMasi, and Delaware’s top business leaders under 40, who have successfully taken their companies to the forefront of their chosen industries and given back to the community. 

If you would like to join the Muscle Movement Foundation Family at the awards ceremony, and celebrate Rob DeMasi's accomplishments, you may purchase a ticket at the following link: Click here!

Congratulations to all Delaware winners!

 

 

 

 

Questions/Press Release: info@musclemovementfoundation.org

 

© 2018 Muscle Movement Foundation | www.MuscleMovementFoundation.org

Muscle Movement Fdn. | 2017-2018 National Champions

JERSEY SHORE WILDCATS BANTAM BLACK HOCKEY TEAM CLAIMS MMF CHARITY OF CHAMPIONS TITLE

NJ YOUTH HOCKEY TEAM DEDICATES SEASON TO #55

WALL TOWNSHIP, NJ - Coach Scott Harrington and the Jersey Shore Wildcats Bantam Black Hockey Team were thrilled to welcome a special teammate to the ice this past hockey season. The team joined the Muscle Movement Foundation's Charity of Champions campaign; a campaign that unites athletes across the country in the fight against neuromuscular disease. By way of the Muscle Movement Foundation (MMF), Harry Smith was signed to the Jersey Shore Wildcats Hockey Team! 

 Head Coach Scott Harrington presents Muscle Movement Fnd. Muscle Champion, Harry Smith, his very own Jersey Shore Wildcats hockey jersey! #55!

Head Coach Scott Harrington presents Muscle Movement Fnd. Muscle Champion, Harry Smith, his very own Jersey Shore Wildcats hockey jersey! #55!

A special bond was immediately formed between #55 Harry Smith, and his new teammates! Harry was welcomed at practices, games, team parties, and events! Harry proudly attended the ice hockey games and cheered along his fellow teammates, while they competed in honor of his fight against Emery-Dreifuss muscular dystrophy (EDMD). EDMD is a form of muscular dystrophy that is characterized by muscle degeneration and weakness which primarily affects an individual's voluntary muscles. The disease commonly affects the individual's calves, shoulders, upper arms, and additionally may cause contractures (hardening of muscles or tissue) in the heels, back of the arms (elbows), and neck. EDMD also commonly displays heart problems. The disease is a genetic condition and may be inherited in an x-linked recessive pattern (from the mother), autosomal dominant pattern (from either parent), or autosomal recessive pattern (from both parents). Genetic research continues in attempt to develop a stronger understanding of the disease and discover effective therapies that may assist with the presence of muscle degeneration.

 Harry Smith when his team scores a goal!

Harry Smith when his team scores a goal!

 Harry Smith when the ref makes a bad call!

Harry Smith when the ref makes a bad call!

Unfortunately, Harry lost his ability to stand and walk this year. Due to the progressive degeneration of Harry's muscles, and after being denied insurance coverage for physical therapy, Harry's strength and mobility diminished. Additionally, Harry began to experience cardiac arrhythmias. The reality of EDMD truly started to show its ugly face; nonetheless, Harry's resiliency persevered. Every day Harry wakes up with a smile on his face and inspires people with his charm, big personality, and remarkable positive attitude! Harry and his family found hope in a service dog named Queenie. Although Queenie was not the biggest fan of ice hockey, she would stay by Harry's side while he cheered on his team! Harry's disease continued to progress throughout the season, and the Wildcats continued to play in his honor.

  Muscle Champion, Harry Smith, endures testing for his cardiac arrhythmia due to EDMD.

Muscle Champion, Harry Smith, endures testing for his cardiac arrhythmia due to EDMD.

  The unfortunate reality of disease impacts Harry, while his parents lovingly stay by his side every step of the way.

The unfortunate reality of disease impacts Harry, while his parents lovingly stay by his side every step of the way.

  Harry enjoys a NJ Wildcats game with Queenie by his side!

Harry enjoys a NJ Wildcats game with Queenie by his side!

Harry Smith invited Muscle Movement Foundation Founder, Rob DeMasi, and Vice President, Teresa Votta, to a game towards the end of the season. After an impressive performance, the ice hockey team embraced #55 Harry Smith on the ice after a team win! The team continued to excel on and off the ice in honor of their team captain, #55! The team advanced to the New Jersey Youth Hockey League (NJYHL) Championships this year. The Jersey Shore Wildcats played with the strength of #55 Harry Smith in their hearts! After a phenomenal season, the Wildcats finished the season exactly how they had planned; New Jersey Youth Hockey League Champions!

Winning the championship was special but the team was more concerned about the final score of an additional championship. The team competed in the Muscle Movement Foundation's National Charity of Champions campaign. The Wildcats relentlessly worked to raise awareness about neuromuscular disease in their local community, dedicate each game to #55, and encourage support by their loved ones to directly impact Harry Smith. By the end of the season, Coach Scott Harrington received the call from Muscle Movement Foundation Founder, Rob DeMasi. The Jersey Shore Wildcats were deemed 2017-2018 Muscle Movement Foundation National Champions and raised the most support for their Muscle Movement Foundation Muscle Champion! The campaign included over 100 athletes and over 20 teams from 10 states throughout the country. The Jersey Shore Wildcats Hockey Team raised an impressive $4,800 in honor of #55 Harry Smith!

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  Jersey Shore Wildcats' Josh Scheck, earned the 2017-2018 MMF National Athlete of the Year Award! This award is presented to a single scholar-athlete who raises the most support for their MMF, Muscle Champion. Over 100 athletes across the country competed for this award.

Jersey Shore Wildcats' Josh Scheck, earned the 2017-2018 MMF National Athlete of the Year Award! This award is presented to a single scholar-athlete who raises the most support for their MMF, Muscle Champion. Over 100 athletes across the country competed for this award.

Harry Smith and team were excited for their end of the year awards ceremony! Once again, #55 Harry Smith was sure to extend the invite to Muscle Movement Foundation Founder, Rob DeMasi! Rob traveled to Wall Township, NJ to enjoy delicious food, interact with the athletes, meet the Wildcat families, and learn about the life-changing memories created throughout the season. After fun games, delicious food, and a live ice hockey game on television, the Wildcat families and athletes gathered for the presentation. Gloria Smith, the mother of Harry Smith, addressed the team:

When you have a child, you have hopes and dreams for them, and it felt like everything got squashed. And it felt like life was over for me. And it felt like a new reality had to happen. To figure out how we could get by. And than this year came along and you guys all taught us a new life. You taught Harry how to be brave. Harry received an award in school for perseverance and bravery, and before that he was not that person. And that’s because of you guys...I want you all to know you have changed this child’s life for the rest of his life. You made him a brave child. You made him a strong child, even though he does not have physical strength...
— Gloria Smith

Gloria, mother of Harry Smith, addresses Harry’s ice hockey team!

By the power of a Muscle Movement Foundation team, Muscle Champion Harry Smith gained another network of support, made life-lasting memories, and was presented life-changing accommodations that have enhanced his quality of life. Following the season, #55 Harry Smith was approved to receive a power wheelchair. Just two days prior to receiving his power wheelchair, Muscle Movement Foundation Founder, Rob DeMasi, traveled to Wall Township, NJ to present Harry, Gloria, and his family a wheelchair accessible van. Thanks to Coach Scott Harrington and the Wildcats' initiative in joining the Muscle Movement Foundation's Charity of Champions program, Harry now has the autonomy every boy deserves!

  Muscle Movement Foundation Founder, Rob DeMasi, with Muscle Champion, Harry Smith, and his new wheelchair accessible automobile.

Muscle Movement Foundation Founder, Rob DeMasi, with Muscle Champion, Harry Smith, and his new wheelchair accessible automobile.

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Coach Scott Harrington was interviewed after the season. During the interview, he elaborated on his experience in having his team join the Muscle Movement Foundation. Here is his testimony:

Partnering with the Muscle Movement Foundation has been something that I have wanted for my players in all of my coaching career. It has allowed me the opportunity to show my players what it means to be humble and appreciate what they possess. The reality of the struggles that many kids go through on a daily basis is not always tangible - most wouldn’t understand unless presented to them. I wanted an experience like this to help them appreciate what they have and make them aware of the struggles of others. Making these players understand the impact they can create for less fortunate children and contribute in their own unique ways is such an incredible experience!

Harry was a true inspiration to all my players. They all made him feel as if he was a part of the team, day in and day out. Harry affected the team as well right from the beginning. There was one particular player on the team that was struggling with giving the amount of effort that I knew he was capable of. He just needed something to drive him. I pulled this player aside before one of the games and showed him a video of Harry just simply trying to walk. I told him, “Do you see how much of a struggle it is for him just to take a few steps? This isn’t a problem for you in the least bit, so there is no reason for you to not put your very very best effort on the ice every day! Do it in honor of Harry.” And honestly since that conversation it turned that player’s season around completely. Receptive to the message, this particular athlete, and my entire team, played with a different view this year.

In all of my coaching career, I have always tried to instill in my players being humble on and off the ice. Rob DeMasi and the Muscle Movement Foundation helped reinforce my philosophy with my players, whether they are at practice, in a game, at school, or just doing daily chores at home. The experience of having the Muscle Movement Foundation as a part of my team has supported my philosophy and helped the team with a very successful season.

Rob DeMasi is a true inspiration to many and I love the vision and passion he possesses. I want to try and spread his message as far as I can reach, and I know this is just the beginning of a great relationship.”
— -Coach Scott Harrington

Coach Scott Harrington has continued as an ambassador for the Muscle Movement Foundation and continues to spread the MMF message in the sport of ice hockey and in his local community. Coach Harrington has added an additional ice hockey team to the Muscle Movement Foundation's "Charity of Champions" program, and is excited for Muscle Champion, Harry Smith, to join a new team this year. Additionally, he has helped Harry find a new passion in life - sled hockey! MMF Muscle Champion, Harry Smith, will begin sled hockey this year! Sled hockey is a sport that allows individuals who have physical disabilities to play the game of ice hockey! Harry is very excited for this year! Furthermore, Coach Scott Harrington has extended the Muscle Movement Foundation's resources to another local individual who is living with neuromuscular disease. The new family is excited to join an ice hockey team this year, by way of the Muscle Movement Foundation!

The power of a team is strong! When this power is brought to the forefront of the lives of families affected by muscle disease, it provides life-changing strength. Congratulations and special thanks to Muscle Movement Foundation "Muscle Champion", Harry Smith, Harry's family, Coach Scott Harrington, and the families of the Jersey Shore Wildcats Hockey Team for demonstrating excellence; on and off the ice!

It takes a team effort to fight muscle disease. With the strength of your team, the MMF's families will live life stronger!

If you are interested in joining the Muscle Movement Foundation's 2018-2019 Charity of Champions Program, email info@musclemovementfoundation.org!

 

 

Questions/Press Release: info@musclemovementfoundation.org

 

© 2018 Muscle Movement Foundation | www.MuscleMovementFoundation.org

 

Hockessin Parade | 4th of July

MUSCLE MOVEMENT FND. IS SCHEDULED TO PARTAKE IN THE HOCKESSIN, DE FOURTH OF JULY PARADE!

HOCKESSIN, DE - The Muscle Movement Foundation is thrilled to partake in the Hockessin, DE Fourth of July Parade! We will be using our muscles to raise awareness for the fight against muscle disease! Our team will be marching down Old Lancaster Pike from Kenwick Rd. to Valley Rd.! Keep an eye out for the Muscle Movement Fnd.'s "muscle car" and our custom float, which was designed by way of our board members! Several Muscle Champions will be joining us for the parade! Our Muscle Champions will be handing out educational brochures, candy, and more! Ensure you reach for a flyer to learn about our services, business partnerships, school clubs, community service opportunities, latest news, and upcoming events!

If you and your loved ones would like to join us in our Fourth of July march, please email info@musclemovementfoundation.org at your earliest convenience! We look forward to you joining us at the parade!

Time: Parade begins at 3pm
Where: Old Lancaster Pike, Hockessin, DE
Roads Closed: Old Lancaster Pike from Kenwick Rd. to Valley Rd.
Roads are to be closed from 1:45 p.m. through the end of the parade (approx. 4:15pm).

PARADE STAGING AREAS

Staging Area 1:  St. Mary of the Assumption Church, 7200 Lancaster Pike, Hockessin, DE 19707
Staging Area 2:  Sycamore Hill Church, 505 School House Rd, Hockessin, DE 19707
**Absolutely No Public Parking in Staging Areas.

For more information about the parade: Click here!

 

 

Questions?: Info@musclemovementfoundation.org

 

© 2018 Muscle Movement Foundation | www.musclemovementfoundation.org

WilmU Baseball | CACC Champions

WILMINGTON UNIVERSITY BASEBALL TEAM DEDICATES CHAMPIONSHIP SEASON TO MUSCLE CHAMPION, MIKE SMITH

WilmU Baseball Team Dedicates Season to New Wildcat Teammate

NEW CASTLE, DE - The Wilmington University Baseball Team finished an impressive 2018 season this spring. The Wildcats were crowned Central Atlantic Collegiate Conference (CACC) Champions; winning twice against Felician University to claim their first championship since 2015. Coach Brian August and team were thrilled to earn another championship for the record books; however, the Wildcats were ecstatic to be crowned champions in honor of a specific teammate.

Mike Smith, a 22 year old Wilmington University student, was signed to the Wildcat Baseball Team by way of Muscle Movement Fnd. Founder/President, Rob DeMasi and WilmU Head Baseball Coach, Brian August. Mike is living and overcoming the effects of duchenne muscular dystrophy (DMD); a genetic disease that causes muscle degeneration and weakness throughout the body. Despite the obstacles Mike endures, he has furthered his education at Wilmington University and has served as the Official Muscle Movement Fnd. Delaware State Ambassador since 2015!

      Coach Brian August and Wildcat seniors welcome Muscle Champion, Mike Smith, to the team!

    Coach Brian August and Wildcat seniors welcome Muscle Champion, Mike Smith, to the team!

On Thursday, May 24th, the Wildcats celebrated their victorious season at an end of the year awards ceremony located at Timothy’s of Newark in Newark, DE. Coach August presented many awards to his elite scholar-athletes. The final award was a special MVP award, which was presented to one player who demonstrated consistent resiliency, strong character, and remarkable attitude. Coach August presented this award to Muscle Movement Fnd. signee, Mike Smith; in addition to, several tournament awards that the team earned throughout the season, and a special envelope. Enclosed in the envelope was $2,000, which Mike’s teammates individually fundraised for him throughout the season! The contributions from the team will directly empower Mike Smith with life-changing accommodations.

  MMF President, Rob DeMasi (left), Wilmington University Director of Athletics, Dr. Stefanie Whitby, Head Baseball Coach, Brian August (right), and Muscle Champion, Mike Smith!

MMF President, Rob DeMasi (left), Wilmington University Director of Athletics, Dr. Stefanie Whitby, Head Baseball Coach, Brian August (right), and Muscle Champion, Mike Smith!

  The WilmU Wildcats Baseball Team rally around Muscle Champion, Mike Smith, for a 2018 team picture to celebrate their championship season!

The WilmU Wildcats Baseball Team rally around Muscle Champion, Mike Smith, for a 2018 team picture to celebrate their championship season!

Jackie Smith, Mike's mother, made her way to the front of the banquet room to address her son's fellow teammates and families. Emotion moved through Jackie's mind and body, bringing tears to her eyes.

Thank you to all parents for raising such fine men, who have fully embraced him. And I never thought I would attend a sports banquet where Michael would be honored. During our tough times, we have came across a lot of angels, and this year his angels have helped him through the sport of baseball. And I am so thankful, so so thankful..
— Jackie Smith
                       Jackie Smith and Mike Smith smile for a picture during signing day 2018.

                     Jackie Smith and Mike Smith smile for a picture during signing day 2018.

It takes a team of Wildcats to fight muscle disease! Special thank you to Coach Brian August for embracing the Muscle Movement Fnd. annually. The strength of a team is special, and the Muscle Movement Fnd. and the Smith family are grateful for our Wildcat family.

 

Questions?: info@musclemovementfoundation.org

 

© 2018 Muscle Movement Foundation | www.musclemovementfoundation.org

In Loving Memory | Coach Mike Drass

IN LOVING MEMORY OF WESLEY COLLEGE'S MIKE DRASS

DOVER, DE - The Muscle Movement Fnd. is saddened by the recent loss of Wesley College Athletic Director and Head Football Coach, Mike Drass. During his 25 year tenure for Wesley College Football Program, Coach Drass earned a 229-69-1 record, which included six NCAA tournament semifinal appearances, 14 NCAA tournaments, three consecutive years empowering a local Muscle Movement Fnd. Muscle Champion, and touching the lives of thousands of students, athletes, colleagues, and families.

  Coach Mike Drass welcomes Muscle Movement Fnd. Muscle       Champion, Eddie Hazeldine and his sister, Sara, at Drass Field!

Coach Mike Drass welcomes Muscle Movement Fnd. Muscle       Champion, Eddie Hazeldine and his sister, Sara, at Drass Field!

From 2015-2017, Coach Drass took initiative in working directly with Muscle Movement Fnd. Founder/President and Delaware native, Rob DeMasi. Coach Drass supported DeMasi's personal diagnosis of myasthenia gravis (MG) and mission to empower his fellow "Muscle Champions" - individuals living and overcoming the debilitating effects of muscle disease - throughout the state of Delaware. Each year Coach Drass welcomed Muscle Movement Fnd. Muscle Champion, Eddie Hazeldine. In 2015, Eddie was a 12 year old boy living and overcoming the debilitating-effects of duchenne muscular dystrophy (DMD); a genetic disease that causes muscle degeneration and weakness throughout the body. During 2015, Eddie utilized a walking-aid to maintain his mobility. Despite the progression of the disease, which eventually took away Eddie's ability to walk, Eddie woke up every day with a smile on his face and continued to walk as much as possible! After Coach Drass heard about Eddie's story, he was inspired and determined to create a life-changing experience for Eddie and family and was honored to have Eddie meet his team. By way of the Muscle Movement Fnd., Eddie Hazeldine became Wesley College's honorary football captain during 2015. Before the start of the 2016 season, Coach Drass contacted Rob DeMasi requesting for Muscle Champion, Eddie Hazeldine, to be added to his team roster once again. The relationship was magical. Coach Drass presented Eddie his very own Wesley Football jersey and each year welcomed Eddie with the utmost compassion. 

              Coach Mike Drass gives Eddie a pre-coin toss talk before a Fall 2017 home football game!

            Coach Mike Drass gives Eddie a pre-coin toss talk before a Fall 2017 home football game!

Coach Mike Drass was a loving father, husband, coach, and mentor who touched many lives. Special thank you to Coach Drass for his love and dedication to empowering his community; on and off the playing field. We will continue your legacy! #LetsWinAGame

 

Questions?: info@musclemovementfoundation.org

 

© 2018 Muscle Movement Foundation | www.musclemovementfoundation.org

 

WilmU Baseball | ALS Awareness Month

WILMINGTON UNIVERSITY BASEBALL TEAM DEDICATES SEASON TO MUSCLE MOVEMENT FND. DELAWARE STATE AMBASSADOR! 

WilmU Baseball Team Advances to CACC Tournament in Honor of Muscle Movement Fnd. Muscle Champion and WilmU Teammate, Mike Smith! 

NEW CASTLE, DE - May is amyotrophic lateral sclerosis (ALS) awareness month! ALS is a disease which involves the loss of motor neurons. While these nerve cells are lost, their associated muscles are significantly affected; becoming extremely weak. ALS is categorized as a disease involving parts of the nervous system that are responsible for voluntary muscular movement. Following New York Yankees Hall of Famer, Lou Gehrig's diagnosis of ALS, the disease adopted a nickname of: Lou Gehrig's Disease. ALS is one of many forms of muscle disease the MMF operates to combat.

                                 This month we honor the life of Lou Gehrig (1903-1941).

                               This month we honor the life of Lou Gehrig (1903-1941).

What a wonderful way to begin MAY, which is Lou Gehrig's Disease awareness month (ALS awareness month)! This past Saturday, May 5th, 2018, marked a special day for the Wilmington University Wildcats Baseball Team! WilmU Baseball Team’s pitching dominated as the team earned a 2-0 shutout over Nyack College to advance to the CACC Tournament! The student-athletes were excited about advancing to the post-season, but more specifically in honor of a specific teammate who wins an everyday battle against muscle disease!

The players celebrated their win with WilmU teammate and Muscle Movement Fnd. “Muscle Champion” Mike Smith! Mike Smith was signed to the WilmU Baseball Team by way of Muscle Movement Fnd. Founder/President, Rob DeMasi and WilmU Head Baseball Coach, Brian August. Mike is a WilmU Student who is living and overcoming the effects of duchenne muscular dystrophy; a genetic disease that causes muscle degeneration and weakness throughout the body. Despite the obstacles Mike endures, he has furthered his education at Wilmington University and has served as the Official Muscle Movement Fnd. Delaware State Ambassador since 2015!

  Mike Smith and mother, Jackie Smith, proudly pose for a picture during the 2018 Wilmington University Baseball Team's signing day! Mike signed a 2018 Letter of Participation, by way of the Muscle Movement Fnd.!

Mike Smith and mother, Jackie Smith, proudly pose for a picture during the 2018 Wilmington University Baseball Team's signing day! Mike signed a 2018 Letter of Participation, by way of the Muscle Movement Fnd.!

With this weekend’s win, the Wildcat Baseball Team advances to the double elimination portion of the CACC Tournament, which begins on Thursday at Post University! Please feel free to visit the WilmU Baseball Team’s “Strikeout Muscle Disease” page and follow the Wildcats as they continue to “Play with a Purpose to Strikeout Muscle Disease”! All contributions to their page will directly benefit WilmU student-athlete and Muscle Champion, Mike Smith! Click here to view page!

  Muscle Champion, Mike Smith, and the WilmU Baseball Team celebrate as they advance to the 2018 CACC Tournament!

Muscle Champion, Mike Smith, and the WilmU Baseball Team celebrate as they advance to the 2018 CACC Tournament!

Questions: info@musclemovementfoundation.org

 

© 2018 Muscle Movement Foundation | www.musclemovementfoundation.org 

In Loving Memory | Marci Williamson

In Loving Memory of Muscle Champion, Marci Williamson

WILMINGTON, DE - MG Muscle Champion, Marica "Marci" Williamson lived her life full of joy and excitement! She focused her time, energy, and devotion to her three children who she loved dearly. Marci was well-known in her local area as one of the best hairdressers! In fact, despite the physical limitations presented by myasthenia gravis (MG), Marci still managed to persevere and style hair for her friends and family. She was talented, creative, and phenomenally artistic!

Marci was also a state champion bodybuilder. Marci was proud to win four trophies during a one-day competition! She won 1st place in the Bodybuilding Featherweight Division, 4th place in the Crowd Favorite Figure Competition, 1st place for the People's Choice, and Over-All Best Figure in her 2006 show!

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Marci lived relentlessly; overcoming the symptoms of myasthenia gravis (MG). MG is a neuromuscular autoimmune disease that causes fluctuating muscle weakness, paralysis, and fatigue throughout the body. The disease may cause diplopia, dysphagia, dysarthria, weakness in the arms, legs, neck, face, and diaphragm muscles. A myasthenic may experience a "MG crisis". This occurs when one's diaphragm muscles become too weakened for the individual to breathe on their own. There is currently no cure for MG, only treatments that may help manage the symptoms.

In 2014, Marci contacted the MMF in efforts to begin her advocacy journey. Despite her personal fight against myasthenia gravis, she selflessly searched for new ways to further the Muscle Movement Fnd. mission statement to assist fellow affected families in need. For fifteen years she refused to give up. She was an active member at several MMF events, and closely stayed in contact with Muscle Movement Fnd. President, Rob DeMasi, discussing strategic plans for the MMF and their families in need. Several notable events were:

  Muscle Movement Fnd. Advocate and Professional Football Player, Justin Perillo, on a home-visit with Marci in 2015. Justin surprised Marci with authentic and signed memorabilia. Marci wore this apparel all season!

Muscle Movement Fnd. Advocate and Professional Football Player, Justin Perillo, on a home-visit with Marci in 2015. Justin surprised Marci with authentic and signed memorabilia. Marci wore this apparel all season!

  Muscle Movement Fnd. Advocate and Mixed Martial Arts Contender, Brandon Davis, on a home-visit with Marci in 2016. Brandon dedicates his fights to "Knockout Muscle Disease"!

Muscle Movement Fnd. Advocate and Mixed Martial Arts Contender, Brandon Davis, on a home-visit with Marci in 2016. Brandon dedicates his fights to "Knockout Muscle Disease"!

The Saint Mark's High School vs. Salesianum High School "Sack Muscle Disease" Alumni Football Game!

  Muscle Movement Fnd. Founder/President and MG Muscle Champion, Rob DeMasi, introduces MG Muscle Champion, Marci Williamson to the Salesianum and Saint Mark's Football Alumni before the game. A very special moment for Marci and Rob!

Muscle Movement Fnd. Founder/President and MG Muscle Champion, Rob DeMasi, introduces MG Muscle Champion, Marci Williamson to the Salesianum and Saint Mark's Football Alumni before the game. A very special moment for Marci and Rob!

Marci made an appearance at the alumni game to inspire the MMF's partnered athletes to continue the fight against muscle disease. Selflessly, Marci stated,

Today I hope you all can be inspired as athletes to continue the fight not for myself, but for the over one million individuals in the United States affected by muscle disease - For the mothers who cannot take care of their children, and for the sons who deserve the ability to run and play a pick-up football game with their friends.
— MG Muscle Champion, Marci
  Alumni from Saint Mark's High School and Salesianum High School united in a flag football game and honored Marci as their Muscle Movement Fnd. Muscle Champion! They dedicated their performance to Marci's courageous fight!

Alumni from Saint Mark's High School and Salesianum High School united in a flag football game and honored Marci as their Muscle Movement Fnd. Muscle Champion! They dedicated their performance to Marci's courageous fight!

The Smyrna High School Wrestling "Pin Muscle Disease" Match!

  Marci was honored as Smyrna Wrestling's Muscle Champion and helped deliver the Muscle Movement Fnd. message to the audience at the wrestling match!

Marci was honored as Smyrna Wrestling's Muscle Champion and helped deliver the Muscle Movement Fnd. message to the audience at the wrestling match!

Today, we celebrate Marci's life. We remember her for her relentlessness, courage, and ability to dictate her happiness in life. We remember Marci for never allowing her obstacles to affect her happiness, motivation, or desire to be the best person and mother she could possibly be.

Marci is and always will be a true Muscle Movement Fnd. "Muscle Champion"!

Relatives and friends are invited to attend Mass of Christian Burial at St. Anthony of Padua on Tuesday, February 27th, at 11:30a.m.

Address: 901 N. DuPont St., Wilmington, DE 19805

 

 

Contact: Info@musclemovementfoundation.org