Hockessin Parade | 4th of July

MUSCLE MOVEMENT FND. IS SCHEDULED TO PARTAKE IN THE HOCKESSIN, DE FOURTH OF JULY PARADE!

HOCKESSIN, DE - The Muscle Movement Foundation is thrilled to partake in the Hockessin, DE Fourth of July Parade! We will be using our muscles to raise awareness for the fight against muscle disease! Our team will be marching down Old Lancaster Pike from Kenwick Rd. to Valley Rd.! Keep an eye out for the Muscle Movement Fnd.'s "muscle car" and our custom float, which was designed by way of our board members! Several Muscle Champions will be joining us for the parade! Our Muscle Champions will be handing out educational brochures, candy, and more! Ensure you reach for a flyer to learn about our services, business partnerships, school clubs, community service opportunities, latest news, and upcoming events!

If you and your loved ones would like to join us in our Fourth of July march, please email info@musclemovementfoundation.org at your earliest convenience! We look forward to you joining us at the parade!

Time: Parade begins at 3pm
Where: Old Lancaster Pike, Hockessin, DE
Roads Closed: Old Lancaster Pike from Kenwick Rd. to Valley Rd.
Roads are to be closed from 1:45 p.m. through the end of the parade (approx. 4:15pm).

PARADE STAGING AREAS

Staging Area 1:  St. Mary of the Assumption Church, 7200 Lancaster Pike, Hockessin, DE 19707
Staging Area 2:  Sycamore Hill Church, 505 School House Rd, Hockessin, DE 19707
**Absolutely No Public Parking in Staging Areas.

For more information about the parade: Click here!

 

 

Questions?: Info@musclemovementfoundation.org

 

© 2018 Muscle Movement Foundation | www.musclemovementfoundation.org

WilmU Baseball | CACC Champions

WILMINGTON UNIVERSITY BASEBALL TEAM DEDICATES CHAMPIONSHIP SEASON TO MUSCLE CHAMPION, MIKE SMITH

WilmU Baseball Team Dedicates Season to New Wildcat Teammate

NEW CASTLE, DE - The Wilmington University Baseball Team finished an impressive 2018 season this spring. The Wildcats were crowned Central Atlantic Collegiate Conference (CACC) Champions; winning twice against Felician University to claim their first championship since 2015. Coach Brian August and team were thrilled to earn another championship for the record books; however, the Wildcats were ecstatic to be crowned champions in honor of a specific teammate.

Mike Smith, a 22 year old Wilmington University student, was signed to the Wildcat Baseball Team by way of Muscle Movement Fnd. Founder/President, Rob DeMasi and WilmU Head Baseball Coach, Brian August. Mike is living and overcoming the effects of duchenne muscular dystrophy (DMD); a genetic disease that causes muscle degeneration and weakness throughout the body. Despite the obstacles Mike endures, he has furthered his education at Wilmington University and has served as the Official Muscle Movement Fnd. Delaware State Ambassador since 2015!

      Coach Brian August and Wildcat seniors welcome Muscle Champion, Mike Smith, to the team!

    Coach Brian August and Wildcat seniors welcome Muscle Champion, Mike Smith, to the team!

On Thursday, May 24th, the Wildcats celebrated their victorious season at an end of the year awards ceremony located at Timothy’s of Newark in Newark, DE. Coach August presented many awards to his elite scholar-athletes. The final award was a special MVP award, which was presented to one player who demonstrated consistent resiliency, strong character, and remarkable attitude. Coach August presented this award to Muscle Movement Fnd. signee, Mike Smith; in addition to, several tournament awards that the team earned throughout the season, and a special envelope. Enclosed in the envelope was $2,000, which Mike’s teammates individually fundraised for him throughout the season! The contributions from the team will directly empower Mike Smith with life-changing accommodations.

  MMF President, Rob DeMasi (left), Wilmington University Director of Athletics, Dr. Stefanie Whitby, Head Baseball Coach, Brian August (right), and Muscle Champion, Mike Smith!

MMF President, Rob DeMasi (left), Wilmington University Director of Athletics, Dr. Stefanie Whitby, Head Baseball Coach, Brian August (right), and Muscle Champion, Mike Smith!

  The WilmU Wildcats Baseball Team rally around Muscle Champion, Mike Smith, for a 2018 team picture to celebrate their championship season!

The WilmU Wildcats Baseball Team rally around Muscle Champion, Mike Smith, for a 2018 team picture to celebrate their championship season!

Jackie Smith, Mike's mother, made her way to the front of the banquet room to address her son's fellow teammates and families. Emotion moved through Jackie's mind and body, bringing tears to her eyes.

Thank you to all parents for raising such fine men, who have fully embraced him. And I never thought I would attend a sports banquet where Michael would be honored. During our tough times, we have came across a lot of angels, and this year his angels have helped him through the sport of baseball. And I am so thankful, so so thankful..
— Jackie Smith
                       Jackie Smith and Mike Smith smile for a picture during signing day 2018.

                     Jackie Smith and Mike Smith smile for a picture during signing day 2018.

It takes a team of Wildcats to fight muscle disease! Special thank you to Coach Brian August for embracing the Muscle Movement Fnd. annually. The strength of a team is special, and the Muscle Movement Fnd. and the Smith family are grateful for our Wildcat family.

 

Questions?: info@musclemovementfoundation.org

 

© 2018 Muscle Movement Foundation | www.musclemovementfoundation.org

In Loving Memory | Coach Mike Drass

IN LOVING MEMORY OF WESLEY COLLEGE'S MIKE DRASS

DOVER, DE - The Muscle Movement Fnd. is saddened by the recent loss of Wesley College Athletic Director and Head Football Coach, Mike Drass. During his 25 year tenure for Wesley College Football Program, Coach Drass earned a 229-69-1 record, which included six NCAA tournament semifinal appearances, 14 NCAA tournaments, three consecutive years empowering a local Muscle Movement Fnd. Muscle Champion, and touching the lives of thousands of students, athletes, colleagues, and families.

  Coach Mike Drass welcomes Muscle Movement Fnd. Muscle       Champion, Eddie Hazeldine and his sister, Sara, at Drass Field!

Coach Mike Drass welcomes Muscle Movement Fnd. Muscle       Champion, Eddie Hazeldine and his sister, Sara, at Drass Field!

From 2015-2017, Coach Drass took initiative in working directly with Muscle Movement Fnd. Founder/President and Delaware native, Rob DeMasi. Coach Drass supported DeMasi's personal diagnosis of myasthenia gravis (MG) and mission to empower his fellow "Muscle Champions" - individuals living and overcoming the debilitating effects of muscle disease - throughout the state of Delaware. Each year Coach Drass welcomed Muscle Movement Fnd. Muscle Champion, Eddie Hazeldine. In 2015, Eddie was a 12 year old boy living and overcoming the debilitating-effects of duchenne muscular dystrophy (DMD); a genetic disease that causes muscle degeneration and weakness throughout the body. During 2015, Eddie utilized a walking-aid to maintain his mobility. Despite the progression of the disease, which eventually took away Eddie's ability to walk, Eddie woke up every day with a smile on his face and continued to walk as much as possible! After Coach Drass heard about Eddie's story, he was inspired and determined to create a life-changing experience for Eddie and family and was honored to have Eddie meet his team. By way of the Muscle Movement Fnd., Eddie Hazeldine became Wesley College's honorary football captain during 2015. Before the start of the 2016 season, Coach Drass contacted Rob DeMasi requesting for Muscle Champion, Eddie Hazeldine, to be added to his team roster once again. The relationship was magical. Coach Drass presented Eddie his very own Wesley Football jersey and each year welcomed Eddie with the utmost compassion. 

              Coach Mike Drass gives Eddie a pre-coin toss talk before a Fall 2017 home football game!

            Coach Mike Drass gives Eddie a pre-coin toss talk before a Fall 2017 home football game!

Coach Mike Drass was a loving father, husband, coach, and mentor who touched many lives. Special thank you to Coach Drass for his love and dedication to empowering his community; on and off the playing field. We will continue your legacy! #LetsWinAGame

 

Questions?: info@musclemovementfoundation.org

 

© 2018 Muscle Movement Foundation | www.musclemovementfoundation.org

 

WilmU Baseball | ALS Awareness Month

WILMINGTON UNIVERSITY BASEBALL TEAM DEDICATES SEASON TO MUSCLE MOVEMENT FND. DELAWARE STATE AMBASSADOR! 

WilmU Baseball Team Advances to CACC Tournament in Honor of Muscle Movement Fnd. Muscle Champion and WilmU Teammate, Mike Smith! 

NEW CASTLE, DE - May is amyotrophic lateral sclerosis (ALS) awareness month! ALS is a disease which involves the loss of motor neurons. While these nerve cells are lost, their associated muscles are significantly affected; becoming extremely weak. ALS is categorized as a disease involving parts of the nervous system that are responsible for voluntary muscular movement. Following New York Yankees Hall of Famer, Lou Gehrig's diagnosis of ALS, the disease adopted a nickname of: Lou Gehrig's Disease. ALS is one of many forms of muscle disease the MMF operates to combat.

                                 This month we honor the life of Lou Gehrig (1903-1941).

                               This month we honor the life of Lou Gehrig (1903-1941).

What a wonderful way to begin MAY, which is Lou Gehrig's Disease awareness month (ALS awareness month)! This past Saturday, May 5th, 2018, marked a special day for the Wilmington University Wildcats Baseball Team! WilmU Baseball Team’s pitching dominated as the team earned a 2-0 shutout over Nyack College to advance to the CACC Tournament! The student-athletes were excited about advancing to the post-season, but more specifically in honor of a specific teammate who wins an everyday battle against muscle disease!

The players celebrated their win with WilmU teammate and Muscle Movement Fnd. “Muscle Champion” Mike Smith! Mike Smith was signed to the WilmU Baseball Team by way of Muscle Movement Fnd. Founder/President, Rob DeMasi and WilmU Head Baseball Coach, Brian August. Mike is a WilmU Student who is living and overcoming the effects of duchenne muscular dystrophy; a genetic disease that causes muscle degeneration and weakness throughout the body. Despite the obstacles Mike endures, he has furthered his education at Wilmington University and has served as the Official Muscle Movement Fnd. Delaware State Ambassador since 2015!

  Mike Smith and mother, Jackie Smith, proudly pose for a picture during the 2018 Wilmington University Baseball Team's signing day! Mike signed a 2018 Letter of Participation, by way of the Muscle Movement Fnd.!

Mike Smith and mother, Jackie Smith, proudly pose for a picture during the 2018 Wilmington University Baseball Team's signing day! Mike signed a 2018 Letter of Participation, by way of the Muscle Movement Fnd.!

With this weekend’s win, the Wildcat Baseball Team advances to the double elimination portion of the CACC Tournament, which begins on Thursday at Post University! Please feel free to visit the WilmU Baseball Team’s “Strikeout Muscle Disease” page and follow the Wildcats as they continue to “Play with a Purpose to Strikeout Muscle Disease”! All contributions to their page will directly benefit WilmU student-athlete and Muscle Champion, Mike Smith! Click here to view page!

  Muscle Champion, Mike Smith, and the WilmU Baseball Team celebrate as they advance to the 2018 CACC Tournament!

Muscle Champion, Mike Smith, and the WilmU Baseball Team celebrate as they advance to the 2018 CACC Tournament!

Questions: info@musclemovementfoundation.org

 

© 2018 Muscle Movement Foundation | www.musclemovementfoundation.org 

In Loving Memory | Marci Williamson

In Loving Memory of Muscle Champion, Marci Williamson

WILMINGTON, DE - MG Muscle Champion, Marica "Marci" Williamson lived her life full of joy and excitement! She focused her time, energy, and devotion to her three children who she loved dearly. Marci was well-known in her local area as one of the best hairdressers! In fact, despite the physical limitations presented by myasthenia gravis (MG), Marci still managed to persevere and style hair for her friends and family. She was talented, creative, and phenomenally artistic!

Marci was also a state champion bodybuilder. Marci was proud to win four trophies during a one-day competition! She won 1st place in the Bodybuilding Featherweight Division, 4th place in the Crowd Favorite Figure Competition, 1st place for the People's Choice, and Over-All Best Figure in her 2006 show!

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Marci lived relentlessly; overcoming the symptoms of myasthenia gravis (MG). MG is a neuromuscular autoimmune disease that causes fluctuating muscle weakness, paralysis, and fatigue throughout the body. The disease may cause diplopia, dysphagia, dysarthria, weakness in the arms, legs, neck, face, and diaphragm muscles. A myasthenic may experience a "MG crisis". This occurs when one's diaphragm muscles become too weakened for the individual to breathe on their own. There is currently no cure for MG, only treatments that may help manage the symptoms.

In 2014, Marci contacted the MMF in efforts to begin her advocacy journey. Despite her personal fight against myasthenia gravis, she selflessly searched for new ways to further the Muscle Movement Fnd. mission statement to assist fellow affected families in need. For fifteen years she refused to give up. She was an active member at several MMF events, and closely stayed in contact with Muscle Movement Fnd. President, Rob DeMasi, discussing strategic plans for the MMF and their families in need. Several notable events were:

  Muscle Movement Fnd. Advocate and Professional Football Player, Justin Perillo, on a home-visit with Marci in 2015. Justin surprised Marci with authentic and signed memorabilia. Marci wore this apparel all season!

Muscle Movement Fnd. Advocate and Professional Football Player, Justin Perillo, on a home-visit with Marci in 2015. Justin surprised Marci with authentic and signed memorabilia. Marci wore this apparel all season!

  Muscle Movement Fnd. Advocate and Mixed Martial Arts Contender, Brandon Davis, on a home-visit with Marci in 2016. Brandon dedicates his fights to "Knockout Muscle Disease"!

Muscle Movement Fnd. Advocate and Mixed Martial Arts Contender, Brandon Davis, on a home-visit with Marci in 2016. Brandon dedicates his fights to "Knockout Muscle Disease"!

The Saint Mark's High School vs. Salesianum High School "Sack Muscle Disease" Alumni Football Game!

  Muscle Movement Fnd. Founder/President and MG Muscle Champion, Rob DeMasi, introduces MG Muscle Champion, Marci Williamson to the Salesianum and Saint Mark's Football Alumni before the game. A very special moment for Marci and Rob!

Muscle Movement Fnd. Founder/President and MG Muscle Champion, Rob DeMasi, introduces MG Muscle Champion, Marci Williamson to the Salesianum and Saint Mark's Football Alumni before the game. A very special moment for Marci and Rob!

Marci made an appearance at the alumni game to inspire the MMF's partnered athletes to continue the fight against muscle disease. Selflessly, Marci stated,

Today I hope you all can be inspired as athletes to continue the fight not for myself, but for the over one million individuals in the United States affected by muscle disease - For the mothers who cannot take care of their children, and for the sons who deserve the ability to run and play a pick-up football game with their friends.
— MG Muscle Champion, Marci
  Alumni from Saint Mark's High School and Salesianum High School united in a flag football game and honored Marci as their Muscle Movement Fnd. Muscle Champion! They dedicated their performance to Marci's courageous fight!

Alumni from Saint Mark's High School and Salesianum High School united in a flag football game and honored Marci as their Muscle Movement Fnd. Muscle Champion! They dedicated their performance to Marci's courageous fight!

The Smyrna High School Wrestling "Pin Muscle Disease" Match!

  Marci was honored as Smyrna Wrestling's Muscle Champion and helped deliver the Muscle Movement Fnd. message to the audience at the wrestling match!

Marci was honored as Smyrna Wrestling's Muscle Champion and helped deliver the Muscle Movement Fnd. message to the audience at the wrestling match!

Today, we celebrate Marci's life. We remember her for her relentlessness, courage, and ability to dictate her happiness in life. We remember Marci for never allowing her obstacles to affect her happiness, motivation, or desire to be the best person and mother she could possibly be.

Marci is and always will be a true Muscle Movement Fnd. "Muscle Champion"!

Relatives and friends are invited to attend Mass of Christian Burial at St. Anthony of Padua on Tuesday, February 27th, at 11:30a.m.

Address: 901 N. DuPont St., Wilmington, DE 19805

 

 

Contact: Info@musclemovementfoundation.org

Wilmington University | Delaware Run for Strength 5k

Wilmington University Works to Empower Local Individuals Living with Neuromuscular Disease

Wilmington University Becomes CHAMPION SPONSOR of 2018 Muscle Movement Fnd. Delaware Run for Strength 5k

NEW CASTLE, DE - Wilmington University is a proud CHAMPION SPONSOR of the Muscle Movement Foundation's 2018 Delaware Run for Strength 5k! This event is an inclusive 5k walk/run, which provides the opportunity for local individuals living with neuromuscular disease (I.e., ALS, muscular dystrophy, and muscular atrophy) to cross the finish line with their loved ones and supporters! The Muscle Movement Fnd.'s "Muscle Champions" - individuals living and refusing to lose to muscle disease - inspire local schools, athletes, and businesses to move their healthy muscles to combat muscle disease. By way of adaptive running chairs provided by Fusion Inclusion, Muscle Champions complete the 5k course and cross the finish line; fueled by the power of team! The event takes place on Saturday, April 7th, 2018 at Saint Mark's High School.

Why join the Wilmington University 5k walk/run team for this event?!

Coach Brian August and the Wilmington University Baseball Team started their journey with the Muscle Movement Fnd. in 2016! In 2016, they signed 13 year old "Muscle Champion" (duchenne muscular dystrophy survivor), Eddie Hazeldine, to an official Letter of Participation to the team. Click here to view article! At the end of the season, the team successfully helped provide Eddie with a wheelchair accessible ramp for his home; granting Eddie the autonomy every teenage boy deserves! In 2018, the baseball team has signed 22 year old "Muscle Champion" (duchenne muscular dystrophy survivor) and WilmU student, Mike Smith, to their team by way of MMF. The team is excited for another life-changing season this spring! Click here to view article!

  Muscle Movement Fnd. President and WilmU Alumnus, Rob DeMasi, Muscle Champion Eddie Hazeldine, and Wilmington University Head Baseball Coach, Brian August at the 2016 end of the year ceremony!

Muscle Movement Fnd. President and WilmU Alumnus, Rob DeMasi, Muscle Champion Eddie Hazeldine, and Wilmington University Head Baseball Coach, Brian August at the 2016 end of the year ceremony!

  Wilmington University baseball members, Julian Kurych and Nick Macey, welcome Muscle Champion and WilmU student Mike Smith to the team!

Wilmington University baseball members, Julian Kurych and Nick Macey, welcome Muscle Champion and WilmU student Mike Smith to the team!

In 2017, Wilmington University's Cross Country members participated in the Muscle Movement Fnd. 2017 Delaware Run for Strength 5k! Congratulations to WilmU student-athlete, Miguel Suero, for finishing in 1st place overall at the 2017 5k! Additionally, in 2017 the Muscle Movement Fnd. was invited to Wilmington University's "Pause for a Cause" Event. The event provided the opportunity for Wilmington University's students to obtain accredited community service accolades by way of MMF. The support of the WilmU students was phenomenal and the students were receptive to the strong MMF message - Use your healthy muscles to help those living with muscle disease!

  Wilmington University's Miguel Suero crossed the finish line at the 2017 Delaware Run for Strength 5k in 16:51:13, with a pace of 5:25!

Wilmington University's Miguel Suero crossed the finish line at the 2017 Delaware Run for Strength 5k in 16:51:13, with a pace of 5:25!

  Muscle Champion, Mike Smith, with WilmU student-athletes at WilmU's Pause for a Cause Event!

Muscle Champion, Mike Smith, with WilmU student-athletes at WilmU's Pause for a Cause Event!

  Wilmington University Italian Kitchen Staff with Muscle Champion, Mike Smith!

Wilmington University Italian Kitchen Staff with Muscle Champion, Mike Smith!

In 2018, the Wilmington University Italian Kitchen also joined the fight against muscle disease. The staff members joined the baseball team and held a t-shirt and bake sale fundraiser to help enhance the strength, autonomy, and quality of life of Muscle Movement Fnd. "Muscle Champion", and the newest member of the WilmU Baseball Team, Mike Smith!

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Wilmington University hopes to inspire their students, staff, families, friends, and alumni to join their 5k walk/run team at the Muscle Movement Fnd. Delaware Run for Strength 5k! Please visit the following link to register with the WilmU 5k team: Click here!

If you cannot make the event or would like to donate to the Delaware 5k in honor of the WilmU 5k team, please feel free to contribute with a donation at the WilmU fundraising page: Click here!

  Wilmington University's Mascot, Wiley, is looking forward to seeing you on Saturday, April 7th!!

Wilmington University's Mascot, Wiley, is looking forward to seeing you on Saturday, April 7th!!

  Wilmington University Men's Basketball Team will be volunteering at the upcoming 2018 event! Special thanks to Coach Dan Burke!

Wilmington University Men's Basketball Team will be volunteering at the upcoming 2018 event! Special thanks to Coach Dan Burke!

 

Share and RSVP at the MMF 5k Facebook event page: Click here!

The Muscle Movement Fnd. is an IRS-registered 501(c)3 organization. ID #: 46-0554462

5k website: www.mmf5k.com

 

Questions?: info@musclemovementfoundation.org

Halloween Pet Parade | St. Mark's Field Hockey

COACH LORI SCHWEIZER AND SPARTANS JOIN MUSCLE MOVEMENT FOUNDATION

SAINT MARK'S FIELD HOCKEY TEAM HOSTS HALLOWEEN PET PARADE TO FIGHT NEUROMUSCULAR DISEASE

WILMINGTON, DE - The 2017 Saint Mark's High School Field Hockey Team has joined the Muscle Movement Foundation this season, playing in efforts to "Stick it to Muscle Disease"! Coach Lori Schweizer and the Spartans took immediate initiative in joining the MMF, furthering the MMF's mission statement at Saint Mark's High School. Coach Schweizer is thrilled to see the Muscle Movement Foundation's impact in her local community, and continues to play a vital role in assisting MMF's local families in need.

Coach Schweizer is well acquainted with the Muscle Movement Foundation (MMF), founded by Saint Mark's High School Alumnus and MMF President, Rob DeMasi. Lori, and husband, Paul - a physical therapist at ATI Physical Therapy's Pike Creek, DE office - have watched Mr. DeMasi compete since he was young. Their oldest daughter, Courtney Schweizer, and Mr. DeMasi grew up competing in the same local athletic leagues and graduated high school together at Saint Mark's. Paul has opened ATI's doors to Mr. DeMasi for years - successfully rehabilitating Rob during injuries, training him for competition, and welcoming Rob to ATI's facility to maintain a healthy lifestyle after Rob's diagnosis with myasthenia gravis (MG). When Coach Schweizer, and family, learned of the opportunity to support the Muscle Movement Fnd., they were thrilled to do so.

Rob DeMasi’s story was heartbreaking to hear during my daughter’s senior year at Saint Mark’s High School. Rob graduated with my oldest daughter, and was a stellar athlete during high school. Not only did he fight to regain strength and conditioning after he was afflicted with muscle disease - an amazing accomplishment - but now he is paying it forward as the Founder of MMF. Rob is a source of strength, as he muscles through to help others affected by muscle disease.

My reason for supporting MMF is simple. I am blessed with five healthy children whose muscles and athleticism have helped propel them forward to compete in collegiate sports. As a physical therapist, as well as a coach at Saint Mark’s, I take nothing for granted and am compassionate towards those with muscular dysfunction. We need to flex our muscles for those who cannot - and support MMF!
— Coach Lori Schweizer
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This season the girls will host a Halloween Pet Parade, sponsored by Saint Mark's High School Field Hockey Team, in efforts to empower local families affected by neuromuscular disease! Coach Schweizer and Spartans encourage the community to bring their furry friends to campus on Sunday, October 22nd, for a fun day with family and friends. Registration will begin at 11:30 a.m. The event will include face painting and pumpkin decorating stations for children. Additionally, local business partners have provided the opportunity for the participants to win fun prizes, by way of a raffle. Furthermore, a cash prize will be awarded to the 1st place participant and runner-up will be awarded to the following categories: Best Dressed Pet, Best Dressed Pet-Human Combo, and Best Dressed Human.

The judges for the event will consist of Mr. Rob DeMasi, the Muscle Movement Foundation, and local "Muscle Champions" - families courageously overcoming the effects of muscle disease. We hope to see you, and your pets, on 10/22/17!

Early Registration is available here!

If you have any questions about the event, please contact: ljschweiz@aol.com
 

 

Contact: info@musclemovementfoundation.org

 

 

Mount Pleasant Field Hockey | Stick it to Muscle Disease

Green Knight Field Hockey Team Uses Muscles to Win On and Off the Playing Field

MOUNT PLEASANT FIELD HOCKEY TEAM DEDICATES STATISTICS TO MUSCLE MOVEMENT FOUNDATION

WILMINGTON, DE - The Mount Pleasant High School Field Hockey Team has joined the Muscle Movement Foundation (MMF) for their very first season. Head Coach, Pete Meisel, learned of the Muscle Movement Foundation through the widely spread MMF message in his home state of Delaware. A coach who strongly believes in implementing life lessons into coaching, he took immediate initiative to have his girls join the MMF - the Charity of Champions.

Coach Meisel invited Muscle Movement Fnd. Founder and President, Rob DeMasi, to speak to his team. The young ladies quickly learned about the obstacles that MMF families endure. They also learned how important their opportunity is as student-athletes and the significance of healthy muscular function. By the end of the speech, the girls were thrilled to be apart of the MMF and quickly started to discuss ideas to empower local Muscle Champions in need.

The Green Knights have created their own Muscle Movement Foundation page to raise contributions for the fight against neuromuscular disease. Please feel free to "sponsor" the team for their performance on and off of the field this season!

Click the following link to donate to the Muscle Movement Fnd. - Mount Pleasant Field Hockey page: STICK IT TO MUSCLE DISEASE!

The Green Knights look forward to holding an apparel fundraiser and participate in the Muscle Movement Foundation's Annual Delaware Run for Strength 5k on April 7th, 2018!

 

Contact: info@musclemovementfoundation.org

Two Teams. One Purpose. | Stick it to Muscle Disease

Newark High School Hosts Concord High School for "Stick it to Muscle Disease" Game

Newark and Concord Field Hockey Teams Dedicate Game to the Fight Against Neuromuscular Disease

NEWARK, DENewark High School Yellow Jackets (Newark, DE) hosted their "Stick it to Muscle Disease" Game against Concord High School on Friday, September 15th, 2017. The Yellow Jackets and the Raiders have both joined the Muscle Movement Foundation this season, uniting in the fight against muscle disease!

  President, Rob DeMasi, delivering speech to Newark & Concord High School Field Hockey Teams

President, Rob DeMasi, delivering speech to Newark & Concord High School Field Hockey Teams

MMF Founder/President, Rob DeMasi, spoke to both teams before the start of the game. He elaborated on his personal muscle disease survivor story and success the MMF has accomplished in the community due to the support of MMF's partnered athletic teams. The student-athletes from Newark and Concord wore red, black, and gold ribbons in their hair to represent the colors of the Muscle Movement Foundation. The red in the ribbon stands for the variety of tests, procedures, treatments, & medications our families endure. The black represents the difficult times our families may experience. Finally, the gold/yellow represents the light at the end of the tunnel, which symbolizes the amazing support the MMF provides by way of our Charity of Champions Program - Champions across the country playing in honor of the MMF's Muscle Champions!

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The student-athletes had the opportunity to play in front of a special individual who was in attendance at the game. Muscle Champion, Rhiannon Downey, understands the significance behind the red, black, and gold ribbons worn by the athletes from a first person perspective. At just 13 years old, Miss Downey was diagnosed with myasthenia gravis, an autoimmune form of muscle disease which causes fluctuating muscle weakness, paralysis, and fatigue throughout the body. Miss Downey, a stellar softball and field hockey player, endured the shocking trials and tribulations leading to a diagnosis of muscle disease. From competitively using her muscles at will on the playing field, to collapsing in the arms of a neurologist after completing just several body squats, Rhiannon and her family endured the unexpected - a diagnosis of a disease that would affect her muscles for the rest of her life. Nonetheless, Rhiannon quickly persevered and fully defined the odds in living with myasthenia gravis. At 13 years old, surgeons cracked her sternum open - similar to open heart surgery - and removed her thymus gland in hopes to assist Rhiannon in the long term prognosis of the disease. The removal of the thymus gland may result in a permanent, or temporary, remission; although, some patients may see little to no results after enduring the invasive surgery. After the surgery, Rhiannon persevered like the true champion she is. She relentlessly overcame the procedure, which may exacerbate symptoms of MG, and began her comeback! After her diagnosis and surgery, Rhiannon returned to her home life, the classroom, and the playing field and excelled tremendously! She enrolled at Concord High School where she earned academic all-state and served as a starter on the softball and field hockey teams. After graduating from Concord High School she played club field hockey for Towson University and is currently furthering her education at Neumann University, pursuing a career in nursing. Miss Downey also serves as an advocate for the Muscle Movement Foundation. Her running team, Team RAD, attended the MMF's 2017 Delaware Run for Strength 5k with close to 30  participants and raised over $1,000 for her fellow Muscle Champions in need!

Miss Rhiannon Downey - the definition of a champion; a true Muscle Champion!

  Muscle Champion, Rhiannon Downey (left), and the Concord Field Hockey Team

Muscle Champion, Rhiannon Downey (left), and the Concord Field Hockey Team

The final score of the game recorded as Concord-7, Newark-0. Although organized sports deems one team the game winner, both teams were deemed "Champions" by over 1 million Americans who are affected by muscle disease.

We look forward to seeing both teams at our Annual 2018 Delaware Run for Strength 5k which will take place on April 7th, 2018 this year.

2 teams. 1 Purpose. "Stick It To Muscle Disease"!

  Concord High School's "Stick it to Muscle Disease" Player of the Game, Sarah Raab!

Concord High School's "Stick it to Muscle Disease" Player of the Game, Sarah Raab!

  (click here to view video)  Newark High School's "Stick it to Muscle Disease" Player of the Game, Sophia Talley!

(click here to view video) Newark High School's "Stick it to Muscle Disease" Player of the Game, Sophia Talley!

 

Contact: Themmo2012@gmail.com

Conrad Schools of Science | End Muscle Disease

Red Wolves Football Team Leads School Fight Against Neuromuscular Disease

STUDENT-ATHLETE, JON PISOCKI, INSPIRES SCHOOL TO EMPOWER LOCAL MUSCLE CHAMPIONS IN NEED

WILMINGTON, DE - Balancing an occupation with a school schedule may be difficult for scholars to accomplish. Early mornings and late nights can feel relentless. If you add double session practices to the mix, it may seem impossible. Conrad Schools of Science Senior, Jon Pisocki, is familiar with the schedule. The scholar-athlete worked hard during double session football practices this summer and prepared for the start of the school year, while holding down a job at Delaware Swim & Fitness Center - a local gymnasium and fitness center. John understands the significance of hard work and dedication. He is son of Jonlun Pisocki, a registered nurse, and Stefan Pisocki, a registered dietitian. Not to mention, Jonlun and Stefan were referred to as the "Schwarzeneggers" during their prime in bodybuilding competition. Stefan was the 1987 Junior Tall American Natural Bodybuilding Conference Champion and Jonlun also competed and modeled. Jonlun and Stefan understand the significance of hard work and have worked to instill the same values and ethics in John, which have motivated him to fully embrace the opportunities he has in life.

John met Muscle Movement Foundation (MMF) President, Rob DeMasi, during a shift at Delaware Swim & Fitness Center this summer. He quickly learned of the MMF, Mr. DeMasi's survivor story, and the obstacles that the MMF families endure. Jon Pisocki saw an opportunity to make a difference and immediately sprung into action. Jon immediately inspired his coaches to join the MMF for the fall season. Head Football Coach Bob Wolford was thrilled to have the opportunity to have his student-athletes dedicate their season to winning on and off the field - in honor of over one million Americans affected by muscle disease. Coach Wolford and staff invited President, Rob DeMasi, to speak to the team prior to the start of this season. 

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Jon Pisocki's initiative did not stop here. He furthered his knowledge about community service learning and researched additional schools who have implemented active Muscle Movement Foundation clubs on campus. John requested a meeting with his principal, Mr. Mark Pruitt, to discuss the establishment of a club. Through the month of September, Jon organized the logistics of the club. Staffed by Coach Francis Gregor, the Muscle Movement Foundation at Conrad Schools of Science will launch this November! In the meantime, the Muscle Movement Foundation message is actively spreading throughout the school!

On September 16th, 2017, Conrad welcomed two special individuals at the Red Wolves' first home football game of the season. Muscle Champions, Eddie Hazeldine and Josh Wallace, were signed to the team by way of the MMF's Charity of Champions Program. The Charity of Champions Program pairs Muscle Champions - individuals living and refusing to lose to muscle disease - with athletic teams across the country. Eddie and Josh are living and refusing to lose to duchenne muscular dystrophy (DMD), a genetic disease that causes progressive muscle degeneration and weakness. DMD is inherited by way of an x-linked recessive pattern - generally boys inherit the gene from their mother. Individuals affected by DMD lose their ability to walk around 12 years of age; however, sometimes this occurs sooner or later depending on the progression of the disease. Although the disease may present obstacles for DMD Muscle Champions, and their families, MMF and their partnered schools/athletic teams have provided accommodations to empower families in need. 

  (left) Muscle Champion, Josh Wallace, and (right) Muscle Champion, Eddie Hazeldine, ride to the coin toss with the Conrad Football Captains!

(left) Muscle Champion, Josh Wallace, and (right) Muscle Champion, Eddie Hazeldine, ride to the coin toss with the Conrad Football Captains!

Although DMD may present obstacles for DMD Muscle Champions, and their families, the MMF and their partnered schools/athletic teams have provided accommodations to empower families in need. Muscle Champion, Eddie Hazeldine, has experienced this support first hand. Eddie Hazeldine joined several athletic teams in 2016. By way of the Muscle Movement Foundation, the Hazeldine family received a wheelchair accessible automobile and wheelchair accessible ramp for their home, which significantly improved the quality of life of Eddie and his family. Eddie now has the autonomy that every teenage boy deserves! Muscle Champion, Eddie Hazeldine, is taking initiative to support Muscle Champion, Josh Wallace, as he is new to the Muscle Movement Fnd. In addition to Muscle Champion, Eddie Hazeldine, Jon Pisocki, and the football team, support for Josh Wallace continues to spread throughout campus!

  Mr. Rob Naylor poses with the Muscle Movement Foundation Instagram frame!

Mr. Rob Naylor poses with the Muscle Movement Foundation Instagram frame!

  Muscle Champions, Josh Wallace and Eddie Hazeldine, shake hands with the team's competition.

Muscle Champions, Josh Wallace and Eddie Hazeldine, shake hands with the team's competition.

  Conrad Cheerleaders pose in the Muscle Movement Fnd. Instagram frame!

Conrad Cheerleaders pose in the Muscle Movement Fnd. Instagram frame!

  Students, Skyler Poore and Emily Testa, are completing their community service hours with the Muscle Movement Foundation.

Students, Skyler Poore and Emily Testa, are completing their community service hours with the Muscle Movement Foundation.

If any students would like to join the Muscle Movement Foundation at Conrad Schools of Science, please feel free to speak with the club President, Jon Pisocki, or Mr. Gregor. If you are interested in volunteering for the Muscle Movement Foundation, please feel free to fill out the VOLUNTEER FORM, which is accessible on the home page of www.MuscleMovementFoundation.org!

It takes a team effort to fight muscle disease. Thank you Red Wolves!

 

Facebook: Facebook.com/endmuscledisease

Snapchat: @MMFteamMuscleUp

Instagram: @EndMuscleDisease

Twitter: @MoveYourMuscles

 

Contact: info@musclemovementfoundation.org