Halloween Pet Parade | St. Mark's Field Hockey

COACH LORI SCHWEIZER AND SPARTANS JOIN MUSCLE MOVEMENT FOUNDATION

SAINT MARK'S FIELD HOCKEY TEAM HOSTS HALLOWEEN PET PARADE TO FIGHT NEUROMUSCULAR DISEASE

WILMINGTON, DE - The 2017 Saint Mark's High School Field Hockey Team has joined the Muscle Movement Foundation this season, playing in efforts to "Stick it to Muscle Disease"! Coach Lori Schweizer and the Spartans took immediate initiative in joining the MMF, furthering the MMF's mission statement at Saint Mark's High School. Coach Schweizer is thrilled to see the Muscle Movement Foundation's impact in her local community, and continues to play a vital role in assisting MMF's local families in need.

Coach Schweizer is well acquainted with the Muscle Movement Foundation (MMF), founded by Saint Mark's High School Alumnus and MMF President, Rob DeMasi. Lori, and husband, Paul - a physical therapist at ATI Physical Therapy's Pike Creek, DE office - have watched Mr. DeMasi compete since he was young. Their oldest daughter, Courtney Schweizer, and Mr. DeMasi grew up competing in the same local athletic leagues and graduated high school together at Saint Mark's. Paul has opened ATI's doors to Mr. DeMasi for years - successfully rehabilitating Rob during injuries, training him for competition, and welcoming Rob to ATI's facility to maintain a healthy lifestyle after Rob's diagnosis with myasthenia gravis (MG). When Coach Schweizer, and family, learned of the opportunity to support the Muscle Movement Fnd., they were thrilled to do so.

Rob DeMasi’s story was heartbreaking to hear during my daughter’s senior year at Saint Mark’s High School. Rob graduated with my oldest daughter, and was a stellar athlete during high school. Not only did he fight to regain strength and conditioning after he was afflicted with muscle disease - an amazing accomplishment - but now he is paying it forward as the Founder of MMF. Rob is a source of strength, as he muscles through to help others affected by muscle disease.

My reason for supporting MMF is simple. I am blessed with five healthy children whose muscles and athleticism have helped propel them forward to compete in collegiate sports. As a physical therapist, as well as a coach at Saint Mark’s, I take nothing for granted and am compassionate towards those with muscular dysfunction. We need to flex our muscles for those who cannot - and support MMF!
— Coach Lori Schweizer
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This season the girls will host a Halloween Pet Parade, sponsored by Saint Mark's High School Field Hockey Team, in efforts to empower local families affected by neuromuscular disease! Coach Schweizer and Spartans encourage the community to bring their furry friends to campus on Sunday, October 22nd, for a fun day with family and friends. Registration will begin at 11:30 a.m. The event will include face painting and pumpkin decorating stations for children. Additionally, local business partners have provided the opportunity for the participants to win fun prizes, by way of a raffle. Furthermore, a cash prize will be awarded to the 1st place participant and runner-up will be awarded to the following categories: Best Dressed Pet, Best Dressed Pet-Human Combo, and Best Dressed Human.

The judges for the event will consist of Mr. Rob DeMasi, the Muscle Movement Foundation, and local "Muscle Champions" - families courageously overcoming the effects of muscle disease. We hope to see you, and your pets, on 10/22/17!

Early Registration is available here!

If you have any questions about the event, please contact: ljschweiz@aol.com
 

 

Contact: info@musclemovementfoundation.org

 

 

Mount Pleasant Field Hockey | Stick it to Muscle Disease

Green Knight Field Hockey Team Uses Muscles to Win On and Off the Playing Field

MOUNT PLEASANT FIELD HOCKEY TEAM DEDICATES STATISTICS TO MUSCLE MOVEMENT FOUNDATION

WILMINGTON, DE - The Mount Pleasant High School Field Hockey Team has joined the Muscle Movement Foundation (MMF) for their very first season. Head Coach, Pete Meisel, learned of the Muscle Movement Foundation through the widely spread MMF message in his home state of Delaware. A coach who strongly believes in implementing life lessons into coaching, he took immediate initiative to have his girls join the MMF - the Charity of Champions.

Coach Meisel invited Muscle Movement Fnd. Founder and President, Rob DeMasi, to speak to his team. The young ladies quickly learned about the obstacles that MMF families endure. They also learned how important their opportunity is as student-athletes and the significance of healthy muscular function. By the end of the speech, the girls were thrilled to be apart of the MMF and quickly started to discuss ideas to empower local Muscle Champions in need.

The Green Knights have created their own Muscle Movement Foundation page to raise contributions for the fight against neuromuscular disease. Please feel free to "sponsor" the team for their performance on and off of the field this season!

Click the following link to donate to the Muscle Movement Fnd. - Mount Pleasant Field Hockey page: STICK IT TO MUSCLE DISEASE!

The Green Knights look forward to holding an apparel fundraiser and participate in the Muscle Movement Foundation's Annual Delaware Run for Strength 5k on April 7th, 2018!

 

Contact: info@musclemovementfoundation.org

Two Teams. One Purpose. | Stick it to Muscle Disease

Newark High School Hosts Concord High School for "Stick it to Muscle Disease" Game

Newark and Concord Field Hockey Teams Dedicate Game to the Fight Against Neuromuscular Disease

NEWARK, DENewark High School Yellow Jackets (Newark, DE) hosted their "Stick it to Muscle Disease" Game against Concord High School on Friday, September 15th, 2017. The Yellow Jackets and the Raiders have both joined the Muscle Movement Foundation this season, uniting in the fight against muscle disease!

President, Rob DeMasi, delivering speech to Newark & Concord High School Field Hockey Teams

President, Rob DeMasi, delivering speech to Newark & Concord High School Field Hockey Teams

MMF Founder/President, Rob DeMasi, spoke to both teams before the start of the game. He elaborated on his personal muscle disease survivor story and success the MMF has accomplished in the community due to the support of MMF's partnered athletic teams. The student-athletes from Newark and Concord wore red, black, and gold ribbons in their hair to represent the colors of the Muscle Movement Foundation. The red in the ribbon stands for the variety of tests, procedures, treatments, & medications our families endure. The black represents the difficult times our families may experience. Finally, the gold/yellow represents the light at the end of the tunnel, which symbolizes the amazing support the MMF provides by way of our Charity of Champions Program - Champions across the country playing in honor of the MMF's Muscle Champions!

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The student-athletes had the opportunity to play in front of a special individual who was in attendance at the game. Muscle Champion, Rhiannon Downey, understands the significance behind the red, black, and gold ribbons worn by the athletes from a first person perspective. At just 13 years old, Miss Downey was diagnosed with myasthenia gravis, an autoimmune form of muscle disease which causes fluctuating muscle weakness, paralysis, and fatigue throughout the body. Miss Downey, a stellar softball and field hockey player, endured the shocking trials and tribulations leading to a diagnosis of muscle disease. From competitively using her muscles at will on the playing field, to collapsing in the arms of a neurologist after completing just several body squats, Rhiannon and her family endured the unexpected - a diagnosis of a disease that would affect her muscles for the rest of her life. Nonetheless, Rhiannon quickly persevered and fully defined the odds in living with myasthenia gravis. At 13 years old, surgeons cracked her sternum open - similar to open heart surgery - and removed her thymus gland in hopes to assist Rhiannon in the long term prognosis of the disease. The removal of the thymus gland may result in a permanent, or temporary, remission; although, some patients may see little to no results after enduring the invasive surgery. After the surgery, Rhiannon persevered like the true champion she is. She relentlessly overcame the procedure, which may exacerbate symptoms of MG, and began her comeback! After her diagnosis and surgery, Rhiannon returned to her home life, the classroom, and the playing field and excelled tremendously! She enrolled at Concord High School where she earned academic all-state and served as a starter on the softball and field hockey teams. After graduating from Concord High School she played club field hockey for Towson University and is currently furthering her education at Neumann University, pursuing a career in nursing. Miss Downey also serves as an advocate for the Muscle Movement Foundation. Her running team, Team RAD, attended the MMF's 2017 Delaware Run for Strength 5k with close to 30  participants and raised over $1,000 for her fellow Muscle Champions in need!

Miss Rhiannon Downey - the definition of a champion; a true Muscle Champion!

Muscle Champion, Rhiannon Downey (left), and the Concord Field Hockey Team

Muscle Champion, Rhiannon Downey (left), and the Concord Field Hockey Team

The final score of the game recorded as Concord-7, Newark-0. Although organized sports deems one team the game winner, both teams were deemed "Champions" by over 1 million Americans who are affected by muscle disease.

We look forward to seeing both teams at our Annual 2018 Delaware Run for Strength 5k which will take place on April 7th, 2018 this year.

2 teams. 1 Purpose. "Stick It To Muscle Disease"!

Concord High School's "Stick it to Muscle Disease" Player of the Game, Sarah Raab!

Concord High School's "Stick it to Muscle Disease" Player of the Game, Sarah Raab!

(click here to view video) Newark High School's "Stick it to Muscle Disease" Player of the Game, Sophia Talley!

(click here to view video) Newark High School's "Stick it to Muscle Disease" Player of the Game, Sophia Talley!

 

Contact: Themmo2012@gmail.com

Conrad Schools of Science | End Muscle Disease

Red Wolves Football Team Leads School Fight Against Neuromuscular Disease

STUDENT-ATHLETE, JON PISOCKI, INSPIRES SCHOOL TO EMPOWER LOCAL MUSCLE CHAMPIONS IN NEED

WILMINGTON, DE - Balancing an occupation with a school schedule may be difficult for scholars to accomplish. Early mornings and late nights can feel relentless. If you add double session practices to the mix, it may seem impossible. Conrad Schools of Science Senior, Jon Pisocki, is familiar with the schedule. The scholar-athlete worked hard during double session football practices this summer and prepared for the start of the school year, while holding down a job at Delaware Swim & Fitness Center - a local gymnasium and fitness center. John understands the significance of hard work and dedication. He is son of Jonlun Pisocki, a registered nurse, and Stefan Pisocki, a registered dietitian. Not to mention, Jonlun and Stefan were referred to as the "Schwarzeneggers" during their prime in bodybuilding competition. Stefan was the 1987 Junior Tall American Natural Bodybuilding Conference Champion and Jonlun also competed and modeled. Jonlun and Stefan understand the significance of hard work and have worked to instill the same values and ethics in John, which have motivated him to fully embrace the opportunities he has in life.

John met Muscle Movement Foundation (MMF) President, Rob DeMasi, during a shift at Delaware Swim & Fitness Center this summer. He quickly learned of the MMF, Mr. DeMasi's survivor story, and the obstacles that the MMF families endure. Jon Pisocki saw an opportunity to make a difference and immediately sprung into action. Jon immediately inspired his coaches to join the MMF for the fall season. Head Football Coach Bob Wolford was thrilled to have the opportunity to have his student-athletes dedicate their season to winning on and off the field - in honor of over one million Americans affected by muscle disease. Coach Wolford and staff invited President, Rob DeMasi, to speak to the team prior to the start of this season. 

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Jon Pisocki's initiative did not stop here. He furthered his knowledge about community service learning and researched additional schools who have implemented active Muscle Movement Foundation clubs on campus. John requested a meeting with his principal, Mr. Mark Pruitt, to discuss the establishment of a club. Through the month of September, Jon organized the logistics of the club. Staffed by Coach Francis Gregor, the Muscle Movement Foundation at Conrad Schools of Science will launch this November! In the meantime, the Muscle Movement Foundation message is actively spreading throughout the school!

On September 16th, 2017, Conrad welcomed two special individuals at the Red Wolves' first home football game of the season. Muscle Champions, Eddie Hazeldine and Josh Wallace, were signed to the team by way of the MMF's Charity of Champions Program. The Charity of Champions Program pairs Muscle Champions - individuals living and refusing to lose to muscle disease - with athletic teams across the country. Eddie and Josh are living and refusing to lose to duchenne muscular dystrophy (DMD), a genetic disease that causes progressive muscle degeneration and weakness. DMD is inherited by way of an x-linked recessive pattern - generally boys inherit the gene from their mother. Individuals affected by DMD lose their ability to walk around 12 years of age; however, sometimes this occurs sooner or later depending on the progression of the disease. Although the disease may present obstacles for DMD Muscle Champions, and their families, MMF and their partnered schools/athletic teams have provided accommodations to empower families in need. 

(left) Muscle Champion, Josh Wallace, and (right) Muscle Champion, Eddie Hazeldine, ride to the coin toss with the Conrad Football Captains!

(left) Muscle Champion, Josh Wallace, and (right) Muscle Champion, Eddie Hazeldine, ride to the coin toss with the Conrad Football Captains!

Although DMD may present obstacles for DMD Muscle Champions, and their families, the MMF and their partnered schools/athletic teams have provided accommodations to empower families in need. Muscle Champion, Eddie Hazeldine, has experienced this support first hand. Eddie Hazeldine joined several athletic teams in 2016. By way of the Muscle Movement Foundation, the Hazeldine family received a wheelchair accessible automobile and wheelchair accessible ramp for their home, which significantly improved the quality of life of Eddie and his family. Eddie now has the autonomy that every teenage boy deserves! Muscle Champion, Eddie Hazeldine, is taking initiative to support Muscle Champion, Josh Wallace, as he is new to the Muscle Movement Fnd. In addition to Muscle Champion, Eddie Hazeldine, Jon Pisocki, and the football team, support for Josh Wallace continues to spread throughout campus!

Mr. Rob Naylor poses with the Muscle Movement Foundation Instagram frame!

Mr. Rob Naylor poses with the Muscle Movement Foundation Instagram frame!

Muscle Champions, Josh Wallace and Eddie Hazeldine, shake hands with the team's competition.

Muscle Champions, Josh Wallace and Eddie Hazeldine, shake hands with the team's competition.

Conrad Cheerleaders pose in the Muscle Movement Fnd. Instagram frame!

Conrad Cheerleaders pose in the Muscle Movement Fnd. Instagram frame!

Students, Skyler Poore and Emily Testa, are completing their community service hours with the Muscle Movement Foundation.

Students, Skyler Poore and Emily Testa, are completing their community service hours with the Muscle Movement Foundation.

If any students would like to join the Muscle Movement Foundation at Conrad Schools of Science, please feel free to speak with the club President, Jon Pisocki, or Mr. Gregor. If you are interested in volunteering for the Muscle Movement Foundation, please feel free to fill out the VOLUNTEER FORM, which is accessible on the home page of www.MuscleMovementFoundation.org!

It takes a team effort to fight muscle disease. Thank you Red Wolves!

 

Facebook: Facebook.com/endmuscledisease

Snapchat: @MMFteamMuscleUp

Instagram: @EndMuscleDisease

Twitter: @MoveYourMuscles

 

Contact: info@musclemovementfoundation.org

Delmar High School XC | RUN for STRENGTH

Delmar High School's Cross Country Team Inspires Fight Against Muscle Disease on Campus!

DELMAR XC TEAM EXCITED TO "RUN FOR STRENGTH"

DELMAR, DE - Coach Duel Ballard and the Delmar High School Cross Country Team are dedicating their season to the fight against neuromuscular disease. Coach Ballard learned of the amazing impact the Muscle Movement Foundation is making in the First State and was thrilled to have his team involved. He wanted to implement an organization that inspires his student-athletes to win 24 hours a day and 7 days a week - at home, in the classroom, in the community, and during competition.

On Tuesday, September 12th, MMF President, Rob DeMasi, traveled to Delmar High School to deliver the Muscle Movement Foundation message. Delmar Middle and High School Principal, Mr. Andrew O'Neal and Secondary Assistant Principal, Mr. Michael Bleile joined Mr. DeMasi, Coach Ballard, and the XC Team for the inspirational speech. After the speech, the student-athletes were thrilled to be vital members of the MMF - the Charity of Champions! They immediately brainstormed about fun ways to spread awareness on campus and enhance the lives of the MMF's "Muscle Champions" in need. They will begin this school year with a custom apparel fundraiser and will be dedicating their performance from each cross country meet to the fight against muscle disease!

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Concluding Mr. DeMasi's meeting with the XC team, Principal, Mr. Andrew O'Neal was thrilled to have his students apart of the MMF's exceptional mission statement. He welcomed Mr. DeMasi to speak to any of the coaches and students on campus on that day. Mr. DeMasi spoke with the cheerleading, football, and soccer coaches about the fight against muscle disease and the cross country team's involvement. This school year at Delmar High School should be a year to remember - in honor of over one million Americans affected by neuromuscular disease!

 

If any Delmar High School students are interested in earning accredited community service accolades, please feel free to fill out the VOLUNTEER FORM at www.MuscleMovementFoundation.org

Contact: info@musclemovementfoundation.org

 

St. Elizabeth High School | Sack Muscle Disease

Vikings "Sack Muscle Disease" for 3rd Consecutive Season

ST. ELIZABETH HIGH SCHOOL DEDICATES OPENING WIN TO MUSCLE CHAMPION MAX FRENCH

WILMINGTON, DE - Winning on and off the field has become a tradition at St. Elizabeth High School, a catholic school located in the urban streets of Wilmington, DE. This season marks the third consecutive season the Vikings are putting on their uniforms for a greater purpose than a simple win for their record books. Every fall, the Vikings welcome a local Muscle Champion - an individual living and refusing to lose to neuromuscular disease - as their honorary captain. The student-athletes dedicate their performance on the playing field to enhance their Muscle Champion's quality of life. One of the Viking athletes, starting quarterback Casey Rock, is excited to lead the team as a senior. Casey was named the 2016 Muscle Movement Foundation Delaware Player of the Year for his commendable involvement with the Muscle Movement Fnd. last season.

Link to '16 MMF Delaware Player of the Year Award

Thank you to Mr. DeMasi and all Muscle Champions for inspiring me to be the better player and person that I am today. Thank you for everything you have done for me.
— Casey Rock

Headed by Coach Joe Wright, Rock and the Vikings Football Team are excited to welcome Muscle Champion, Max French, to their team. Max is living and refusing to lose to RYR1 Myopathy, a form of muscle disease that causes exercise intolerance, heat intolerance, progressive muscle weakness, hip contractures, and mile to severe lung problems. Despite enduring the symptoms associated with RYR1 Myopathy, Max enjoys going to summer camp, collecting Pokemon cards, and laughing at jokes! Max served as the Viking's honorary captain and Muscle Champion last season and is excited to bring awareness to the life-threatening diseases that impact his fellow Muscle Champions and their families. 

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On Saturday, September 9th, 2017, Max joined the Vikings for their season opener against Mount Pleasant High School. Max and the St. Elizabeth captains proudly marched to the center of the field for the coin toss. This moment highlighted the significant progress Max has made since last season. Last football season, Max endured fatigue and weakness after several minutes of walking.  When his fatigue was exacerbated, he transferred to a wheelchair to maintain mobility and autonomy. Due to a new medication Max has been prescribed, and occupational therapy, Max can now jog for several minutes. He walked to the center of the field, climbed the hill near the train tracks of Baynard Stadium, and walked back and forth to the concession stand! 

Muscle Champion, Max French, and the St. Elizabeth High School Vikings get ready to "Sack Muscle Disease"!

Muscle Champion, Max French, and the St. Elizabeth High School Vikings get ready to "Sack Muscle Disease"!

The Vikings put on a special performance while Max and family watched their team's victory unravel and help manage the Muscle Movement Foundation's awareness booth. The Vikings successfully earned a win, defeating Mount Pleasant 17-13, and dedicated their first win of the season to Max! Coach Joe Wright and team plan to continue to use Max's inspiration in the classroom, in practice, and on the playing field many more times this season! They look forward to holding several team fundraisers and participating at the Muscle Movement Foundation's Run for Strength 5k on Saturday, April 7th, 2018!

Muscle Champion, Max French, and sister enjoy the MMF Instagram poster!

Muscle Champion, Max French, and sister enjoy the MMF Instagram poster!

Head Football Coach, Joe Wright, and Muscle Champion, Max French, stand for the National Anthem!

Head Football Coach, Joe Wright, and Muscle Champion, Max French, stand for the National Anthem!

Max French, or a fellow Muscle Champion, and the Muscle Movement Foundation will be in attendance at each St. Elizabeth High School home game this season. To view the Viking's full game schedule, visit the following link: https://www.vikings-sports.com/page7757

Contact: Themmo2012@gmail.com

Tooth Fairies with a Purpose | End Muscle Disease

Tooth Fairies with a Purpose Aspire to Directly Impact Delawarean Muscle Champion

ALPINE AND RAFETTO ORTHODONTICS SPONSORED ORGANIZATION HOLDS BENEFIT FOR MUSCLE MOVEMENT FOUNDATION 

NEWARK, DE - Tooth Fairies with a Purpose was founded by a group of women from Alpine & Rafetto Orthodontics with a strong belief in community involvement. These women strive to make a difference by raising awareness for local non-profit organizations. Tooth Fairies with a Purpose learned of the Muscle Movement Foundation's impact in their local community of New Castle County, DE and took immediate initiative in joining the fight against neuromuscular disease.

Tooth Fairies with a Purpose and the Muscle Movement Foundation invite all ladies to join us at Cavaliers Country Club on Thursday, October 26th from 6:00p.m.-8:30p.m for a GIRLS NIGHT OUT! The night will consist of a 3 course buffet dinner, Chinese auction, a cash bar, and a memorable night with friends.

Tickets may be purchased at the link below. Final ticket sales/RSVP by October 19th.

https://www.eventbrite.com/e/tooth-fairies-with-purpose-fundraiser-to-benefit-muscle-movement-foundation-tickets-37431718277

Please feel free to share the following Facebook link and invite your friends to join!: https://www.facebook.com/events/226970347833901/

For more information about the event call 302-239-4600 or email toothfairieswithpurpose@gmail.com. We look forward to seeing you at the event!

UMD Wrestling | Pin Muscle Disease

Kerry McCoy and University of Maryland Wrestlers "Pin Muscle Disease" for Fourth Consecutive Season!

COLLEGE PARK, MDCoach Kerry McCoy and the University of Maryland Wrestling Team have joined the Muscle Movement Foundation for the fourth consecutive season, wrestling with a purpose to "Pin Muscle Disease"! The Muscle Movement Foundation (MMF) is an IRS-registered 501(c)3 organization dedicated to the fight against neuromuscular disease. Reportedly, neuromuscular disease affects over one million loved ones in the United States. Fathers, mothers, sons, and daughters lose their ability to walk, lift their arms, talk, swallow, and breathe in result of the debilitating effects of the disease. The Muscle Movement Foundation provides wrestlers with an avenue to directly assist their "Muscle Champions" in need, by way of physical and emotional accommodations. Defined by MMF Founder and President, Mr. Rob DeMasi, a "Muscle Champion" is an individual living and refusing to lose muscle disease.

                        2014 University of Maryland Wrestling Team

                        2014 University of Maryland Wrestling Team

This Friday, February 3rd, marks the Terrapins "Pin Muscle Disease" Match against Indiana University at 7:00p.m., at the XFINITY Center Pavilion. The Terps will be wrestling in honor of two "Muscle Champions"! Muscle Champions, Josh, 10 years old, and Colton, 3 years old, were diagnosed with a form of muscular dystrophy called duchenne muscular dystrophy (DMD). DMD is a genetic form of muscular dystrophy that produces muscle degeneration and weakness throughout the body. It follows an x-linked recessive inheritance, where boys inherit the genetic mutation from the mother. The disease progressively robs boys of their ability to stand and walk, which usually occurs around 12 years old, but may occur sooner. DMD is one of nine forms of muscular dystrophy, all in which have no cure.

Mr. Kenneth Wallace, grandfather to Josh and Colton, and his daughter, Erica, recently had a difficult discussion with their boys. The discussion informed Josh and Colton about a disease they will live with for the rest of their life, and an experiment that Josh could partake in to hopefully one day help combat the disease. Recently becoming acquainted with the state of Maryland, the family traveled to Johns Hopkins Hospital in Baltimore, MD, where Josh, only 10 years old, underwent a clinical trial involving stem cell research. Mr. Wallace informed his grandson that he would have an opportunity to help find a cure for himself and his fellow "Muscle Champions". Josh heroically agreed to partake in the trial to become a hero for his fellow "Muscle Champions" in need.

Unfortunately, another obstacle was presented after the trial. Just four weeks ago, Josh was dismissed from the trial. Mr. Wallace seemed to notice a lack of positive results from the trial, which involved one year of numerous tests and procedures. A constant demand to overcome the obstacles presented in living with muscle disease is very difficult; especially, when a family fails to see progress. Nonetheless, Mr. Wallace, Josh, Colton, and their mother, Erica, lead a life full of love, faith, and hope for Josh and Colton, and the University of Maryland Terrapins plan to add strength and support to this wonderful family!

The Terrapins plan to "Pin Muscle Disease" to exemplify the superhero strength Josh and Colton portray everyday in living with duchenne muscular dystrophy. If you would like to contribute to University of Maryland's efforts in helping "Pin Muscle Disease" visit their official "Pin Muscle Disease" page by clicking here!

                                       2015 University of Maryland Wrestling Team

                                       2015 University of Maryland Wrestling Team

Wrestle with a Purpose | Pin Muscle Disease

Bethea, Brooks, Garnett, and others join DeMasi and MMF; look to "Pin Muscle Disease" this season

WRESTLERS ACROSS THE COUNTRY DEDICATE THEIR MATCHES TO THOSE WHO LOSE THEIR ABILITY TO WALK, TALK, SWALLOW, AND BREATHE

TRENTON, NJ - “It all started just eight years ago, when I was a senior at St. Marks High School in Wilmington, DE.  I laid on my back, in a hospital bed, unable to walk, unable to talk, unable to swallow, and unable to breathe, virtually paralyzed from head to toe.”

– Rob DeMasi, Founder and President of the Muscle Movement Foundation.

Imagine something as simple as breathing, something that we all take for granted, being as hard as pinning the heavyweight champion of the world.  Imagine being an elite athlete, a nationally recognized wrestling phenom, on your way to becoming a Division I collegiate wrestler, and the above happens, shattering all those hopes and dreams.  That was the world Rob DeMasi lived during his senior year in high school.  DeMasi was misdiagnosed numerous times, throughout high school, as doctors told him all of these symptoms were just in his head.  Because of DeMasi’s elite athleticism and strength it was harder for doctors to include muscle disease as a possibility for Rob.  It wasn’t until he laid in that hospital bed, his mother, Joyce, by his side, that his family doctor, who visited Rob, was able to tip the specialists to what she thought was ailing Rob.  

Operating with an undiagnosed form of muscle debilitating disease, Rob DeMasi was ranked honorable mention via USA Wrestling Magazine as a freshman and sophomore. Depicted, DeMasi was undefeated during his junior year, before enduring an injury, and less than one year later was finally properly diagnosed with myasthenia gravis (MG).

Operating with an undiagnosed form of muscle debilitating disease, Rob DeMasi was ranked honorable mention via USA Wrestling Magazine as a freshman and sophomore. Depicted, DeMasi was undefeated during his junior year, before enduring an injury, and less than one year later was finally properly diagnosed with myasthenia gravis (MG).

Myasthenia Gravis (MG) is a neuromuscular autoimmune disease that causes fluctuating weakness in the voluntary muscle groups, but can result in extreme muscular fatigue, weakness, and paralysis. Finally, DeMasi and his family had an answer to his, three and a half year, misdiagnosed nightmare and it was time to "Pin MG" like it was his opponent on the mat.

After undergoing surgery and receiving proper medication, at Johns Hopkins Hospital, DeMasi fought his way back to a respectable athletic level and suited up on the football field for a season at Delaware Valley University.  After accomplishing a childhood goal, playing a collegiate sport, DeMasi was forced, by the symptomatic return of the disease, to focus his attention back to a scary place in his life that molded him.

Rob DeMasi began the Muscle Movement Foundation with the idea of uniting the communities of athletics and fitness to fight neuromuscular disease. The message that DeMasi delivers to all the teams that support MMF is clear, use the gift of healthy muscles to compete at your highest level every time you take the field, mat, or court because some people do not have that wonderful opportunity. DeMasi has teamed up with high school and college athletic programs to support a local “Muscle Champion” in their fight to conquer their disease.  A “Muscle Champion” is defined by MMF, as an individual living and refusing to lose to muscle disease.  These Champions are highlighted at every sporting event of their partnered teams.

 

MMF has especially had a connection to wrestling.  This year will mark the 3rd consecutive season for the University of Maryland and Edinboro University programs in joining MMF’s cause for raising awareness and contributing to “Pin Muscle Disease.”  The two programs will also host a Muscle Movement Foundation “Pin Muscle Disease” match.  University of Buffalo, North Dakota State University, and George Mason University also plan to join the MMF, wrestling to “Pin Muscle Disease.” Two years ago, national powerhouse University of Iowa partnered with the MMF, specifically because of fellow St. Marks alumnus, Bobby Telford.  During that season, fellow Hawkeye wrestler, Sam Brooks, was introduced to Rob DeMasi and MMF.  Sam was coached in high school by Mike Powell, at Oak Park and River Forest High School.  OPRF wrestling team has joined MMF each of the past three seasons.  Coach Powell is a fellow “Muscle Champion” and was an All-American wrestler from the University of Indiana.  Because of these connections, Sam Brooks has decided to join as an official MMF advocate this season to help “Pin Muscle Disease". Sam will take a lead role, leading his University of Iowa Wrestling Team in a "Pin Muscle Disease" community service learning project with MMF this season. These prestigious wrestling teams continue to lay the foundation for “Pin Muscle Disease,” by inspiring youth, high school, and additional college teams to become involved.  Youth, club, high school, and college wrestlers will all be a crucial part in helping “Pin Muscle Disease” this upcoming season.

Official Muscle Movement Foundation Advocate and University of Iowa Senior, Sam Brooks! Photo credit: Mark Lundy - Lutte Lens, www.LutteLens.com

Official Muscle Movement Foundation Advocate and University of Iowa Senior, Sam Brooks! Photo credit: Mark Lundy - Lutte Lens, www.LutteLens.com

As you can see the Muscle Movement Foundation is very active in the wrestling community, and they have more good news to spread.  MMF’s most recent committed advocates are those that Founder and President, Rob DeMasi is really excited to have on board. Former Virginia Tech NCAA All-American, 3X ACC Champion, and current North Dakota State University Assistant Coach, Jarrod Garnett, has taken initiative in joining the MMF as an official advocate. Jarrod grew up wrestling with DeMasi and wanted to ensure he advances his NDSU wrestlers to the next level on the mat, and in life. Joining the MMF creates an avenue for Garnett to accomplish that, while taking a stand for DeMasi and over one million Americans.

Former University of Pennsylvania wrestling standout and current George Mason University Assistant Coach, Canaan Bethea, has also joined as an official advocate to help “Pin Muscle Disease.” Click the following link to listen to Bethea's message: Bethea's message. This past October Bethea, and co-founder Dr. Mark McLaughlin, invited, MMF Founder and President, Rob DeMasi, to their local youth wrestling camp, “Beat the Streets”, in Bethea's hometown of Trenton, NJ. Click the following link to listen to DeMasi deliver the MMF message at the Beat the Streets Kyle Snyder Wrestling Clinic: DeMasi's message.  The wrestling club is designed to teach underprivileged kids discipline and lifelong skills through the sport of wrestling, while developing their wrestling skills.  Beat the Streets Trenton’s goal was to introduce them to the sport that structured Bethea, DeMasi, and other contributors to the camp like NWCA & Intermat Wrestling Coach of the Year (2015), Tom Ryan, and 2016 Olympic Gold Medalist, Kyle Snyder.

(left to right): DeMasi and Bethea reunite in Bethea's hometown of Trenton, NJ. After learning of DeMasi's journey, Bethea has remained diligent in his efforts to help "Pin Muscle Disease"!

(left to right): DeMasi and Bethea reunite in Bethea's hometown of Trenton, NJ. After learning of DeMasi's journey, Bethea has remained diligent in his efforts to help "Pin Muscle Disease"!

Thanks to Canaan Bethea and Beat the Streets-Trenton, this wrestler walked away from the clinic with world class training and a "Pin Muscle Disease" t-shirt signed via Kyle Snyder.

Thanks to Canaan Bethea and Beat the Streets-Trenton, this wrestler walked away from the clinic with world class training and a "Pin Muscle Disease" t-shirt signed via Kyle Snyder.

DeMasi and Bethea once wrestled in a regional final match, in which DeMasi won, before Rob was diagnosed with Myasthenia Gravis.  The two reconnected this year and when Canaan heard about MMF, he was all in. Bethea was a standout at Penn qualifying for the NCAA National Championships three times.  Canaan Bethea has been working with the “Beat the Streets” wrestling camps for years and this most recent one was run by wrestling royalty, Kyle Snyder and Tom Ryan.  

What isn’t there to say about Kyle Snyder, he was 179-0 in high school, and over the past calendar year he’s become a Pan American champion, youngest American to win a World championship, won a NCAA title, and he won Gold in the Rio Olympics.  Accompanied by his collegiate coach at Ohio State, Tom Ryan, the youth of Trenton, NJ learned from some the best at this camp.

Prior to the start of Beat the Streets-Trenton wrestling clinic, Olympic Champion Kyle Snyder took the time to meet with Muscle Movement Foundation (MMF) Founder, Rob DeMasi, to learn how the MMF has created an avenue for wrestlers to "Pin Muscle Disease".

Prior to the start of Beat the Streets-Trenton wrestling clinic, Olympic Champion Kyle Snyder took the time to meet with Muscle Movement Foundation (MMF) Founder, Rob DeMasi, to learn how the MMF has created an avenue for wrestlers to "Pin Muscle Disease".

“This is very important to be out here in Trenton this weekend,” DeMasi told reporters at the camp, “I am taking a stand for over one million Americans that are fighting muscle debilitating diseases, and most importantly, if I can inspire any wrestler to embrace this opportunity to win on and off the wrestling mat, that is truly something special.”

If you are a coach, wrestler, or parent who would to begin your journey to help “Pin Muscle Disease”, click the following link: Wrestle with a Purpose to Pin Muscle Disease!

 

Contact Pat Garyantes at pg.1313@yahoo.com

Delaware "Sack Muscle Disease" Game

Spartans and Vikings Unite in the Fight Against Muscle Disease; Dedicate Performance to Muscle Champions

SAINT MARK'S SPARTANS HOST "SACK MUSCLE DISEASE" GAME AGAINST SAINT ELIZABETH HIGH SCHOOL

WILMINGTON, DE - The Vikings of Saint Elizabeth High School and the Spartans of Saint Mark's High School have joined the Muscle Movement Foundation for the second consecutive season, playing with a purpose to "Sack Muscle Disease"! Both teams have welcomed local Muscle Champions - individuals living and refusing to lose to muscle disease, and have dedicated their game performances to their Muscle Champion's fight against muscle disease. Each season, the Spartans and the Vikings welcome their Muscle Champions as their honorary captains. Muscle Champions Mike Smith, Max French, and Mason Nellius have proudly walked, or rode, to the coin toss at every home game this season. 

Saint Elizabeth's Christopher Cropper and Mickey Henry with Muscle Champion, Max French

Saint Elizabeth's Christopher Cropper and Mickey Henry with Muscle Champion, Max French

Saint Mark's Austin Colmery with Muscle Champion, Mason Nellius, and brother Max

Saint Mark's Austin Colmery with Muscle Champion, Mason Nellius, and brother Max

Saint Elizabeth Head Football Coach Joe Aviola with Muscle Champion Mike Smith

Saint Elizabeth Head Football Coach Joe Aviola with Muscle Champion Mike Smith

Friday, November 4th, 2016, both teams met at Saint Mark's High School during a regular season game, and competed to be awarded the very first 2016 Delaware "Sack Muscle Disease" Game Trophy! The Saint Mark's Spartans and Saint Elizabeth Vikings carry a strong Catholic Conference rivalry, which creates a competitive environment. Despite this rivalry, the Spartans and Vikings have taken initiative to add a purpose to their rivalry; to "Sack Muscle Disease"!

The Saint Mark's Spartans proudly excepted the trophy from Muscle Movement Foundation President and Spartan Alumnus, Rob DeMasi, after defeating Saint Elizabeth  35-20.

DeMasi presenting Saint Mark's with trophy: 

https://www.youtube.com/watch?v=LfSrIOIbZno

 

Although the Spartans won the game, both teams were deemed Champions. They were crowned Champions by the over one million fathers, mothers, sons, and daughters in the United States, who are robbed of their muscular function. As the young men move their muscles to compete in a sport the love, win or lose, they leave it all on the field in honor of their Muscle Champions.

Saint Mark's High School's Muscle Champion, Mason Nellius, and father, Rich, during halftime at the 2016 Delaware "Sack Muscle Disease" Game

Saint Mark's High School's Muscle Champion, Mason Nellius, and father, Rich, during halftime at the 2016 Delaware "Sack Muscle Disease" Game