Several families in the MMF Community helped present the total amount of contributions raised at the MMF Delaware Run for Strength 5k. Muscle Champions, Anne Marie Wilkinson, Roman Graham, Arun Singh, Reid and Mikey Lo Sapio, Natalie Dell’Oso, and Michael Smith held up the signs to display the total amount raised at this event!
Here is a brief biography of each Muscle Champion:
1.) Roman Graham - Roman is living with hypotonia. Hypotonia means low muscle tone. Roman was diagnosed with hypotonia at birth. Roman Graham joined the Muscle Movement Foundation in 2017. MMF has supported Roman with financial support to assist with genetic testing.
2.) Arun Singh - Arun is living with duchenne muscular dystrophy (DMD). DMD is a genetic disease that causes muscle degeneration and weakness in the body. DMD is inherited in an x-linked recessive pattern, which explains why the majority of individuals who are living with DMD are males. Statistically, individuals living with the disease lose their ability to walk between the ages of 8-18, depending upon the progression of the disease. Unfortunately, DMD keeps research centers at hold. The disease has no cure and is 100% fatal. Arun is a student at St. George’s Technical High School. He has successfully transitioned into a power wheelchair to sustain his autonomy and quality of life. Arun joined the MMF in 2018 attending our 2018 MMF Delaware Run for Strength 5k and serving as St. George’s Football Team’s Muscle Champion and Honorary Captain. He continues to raise awareness for MMF and inspire his fellow Muscle Champions to defy the odds in living with muscle disease.
3.) Reid and Mikey Lo Sapio - Reid and Mikey are also living with duchenne muscular dystrophy (DMD). DMD is a genetic disease that causes muscle degeneration and weakness throughout the body. Reid and Mikey are both involved in clinical trials and are still young enough to be able to walk. They have seen significant progress since becoming involved in clinical trials and remain optimistic for life-changing treatments that will prolong their life. Reid and Mikey joined the MMF in 2017 through the MMF’s Charity of Champion Program. They served as Salesianum Cross Country Team’s Muscle Champions and Honorary Captains. MMF is allocating close to $4,000 to integrate handicap accessible accommodations in the Lo Sapio’s home!
4.) Natalie Dell’Oso - Natalie is living with spinal muscular atrophy (SMA). SMA is a genetic disease that is categorized as a motor neuron disease. Motor neuron diseases cause muscles to become weak due to nerve cells progressively losing their function. SMA primarily affects the upper back, thighs, hips, and shoulders. Natalie is the President of the Muscle Movement Foundation at Charter School of Wilmington - a school club at Charter School of Wilmington that combats neuromuscular disease and provides an applied learning experience for students in a variety of educational fields.
5.) Michael Smith - Michael is living with duchenne muscular dystrophy (DMD). DMD is categorized as a muscular dystrophy. DMD is a genetic disease that causes muscle degeneration and weakness throughout the body. Michael has served as the MMF National Ambassador in The First State in 2017-2018. He has joined the Wilmington University Wildcat Baseball Team by way of the MMF’s Charity of Champions Program. MMF is raising funds to assist Michael with a wheelchair accessible automobile. Michael is also starting a MMF Club at WilmU. He will be the President of the Muscle Movement Foundation at Wilmington University next fall!
Each Muscle Champion displayed one number at a time. MMF Muscle Champion, Anne Marie Wilkinson, displayed the final number, which was the number 2. By way of the Muscle Movement Foundation’s business sponsors, registrants, families, and friends, a total of $22,325 was raised at the 3rd Annual MMF Delaware Run for Strength 5k!